Hi all,
It has been a while since I wrote on here.
I just wanted to update on the progress with my OH stage 4 diagnosis.
My OH was diagnosed a few months ago (details in my profile) and started triplet therapy. He has had 3 rounds of chemo out of 6. Today we went for his 4th round and the oncologist decided to stop chemotherapy to my surprise. My OH was suffering a lot with muscle pain and sleep deprivation around chemo (1 day before and up to a week after). It came to a point where he couldn't do much with his left hand anymore so the oncologist wants to avoid making the damage permanent and stop chemo (Docetaxel).
He also said that he is happy to do so because the PSA is currently undetectable (<0.03). I wasn't overly excited by that news because we know his cancer is low secreting, his PSA was quite low despite the cancer being advanced. He has ordered a PET scan in 4 weeks time so we can see clearer and is confident that the metastases have reduced and even might be gone. He did remind us that if that's the case, it doesn't mean that the cancer is gone, but that it is dormant.
We both left the clinic not really knowing how to feel. It was great news really, but none of us felt like celebrating somehow. I guess it's the change of plan that took us by surprise.
The plan after the PET scan results is to schedule radiotherapy in the new year and carry on taking Darolutamide. And of course hormone therapy for life.
Not sure if any of this is useful to anyone but happy to share and exchange!
