Advanced Prostate Cancer - Oligometastatic?

Hi Sunnysideup.

Many thanks for your reply, yes the RT has made a real difference to my bone pain and long may it last.

I don't know what difference it has made to my PSA but we will find out on the 13th November.

I do hope that everything goes ok tomorrow please please let me know how things go if you don't mind??

Prostate Worrier.

Thanks for the welcome David2017!

 
sorry, I’m fairly new to the terms - what does locally advanced refer to? Would this be mets nearby to the prostate? Glad to hear you’re doing well though and completely agree that none of us know what is around the corner! I’ll keep this thread updated once we get the second opinion incase it’s of further use!  

Hello Sunnysideup 

I will reply to your question (sorry David2017 I hope you don't mind) as I am online at present. Here's our guide to of Locally Advanced Prostate Cancer:

https://www.macmillan.org.uk/cancer-information-and-support/prostate-cancer/locally-advanced-prostate-cancer

I do hope this helps.

Best wishes - Brian.

I think remission is a better word rather than cured in relation to advanced prostate cancer but the doctors in a couple of videos I have seen from American experts do say cured.This is normally judged by a PSA of <0.1 along with no evidence of disease on scans. I also think that other countries are ahead of the UK in certain treatments by virtue of the differences in the way their health systems are set up and the fact that the patient can shop around more for oncologists and treatment - this is the case for us in Greece. The UK has many centers of excellence where the most up to date equipment and thinking is available, including the Royal Marsden where my husband's oncologist was actually trained. Finding out how things are done in other countries can allow us to have a more informed discussion with the experts but ultimately the NICE guidelines might influence what is available within the NHS.

Hi Sunnysideup 

Oligometastatic is seen as potentially curable in Australia. Have a read on the “T3N1M1B//4+5” which just below your post. I have written a few things on Oligometastatic disease as it is part of my journey. There are a few clinical papers and a YouTube video that may be of interest.

All of the best

Munster

Hi Munster, 

I had a read of the thread you mentioned and it gave me lots of info and more things to digest, so thank you. 

Just wanted to update this post as promised on the second opinion meeting my parents had today at the Royal Marsden. The meeting was much more positive than the initial consultation last week with our local hospital - the lead consultant at the RM was supportive of my dad having radiotherapy to the primary prostate tumour and possibly the bone mets too. She confirmed he fell into the  Oligometastatic category and could even potentially be able to take part in a new trial they have coming up out of UCL. We asked about the biphosphonates (thank you so much Alwayshope !) and my dad will be prescribed those along with the calcium and vitamin D supplements to support his bones. She mentioned that my dad would be around for a long time yet and we are so thankful to have had this second opinion as things felt a little bleak this time last week. 

My dad will continue with hormone therapy for another 3-6 months until the radiotherapy begins and if it would be of any use, I can keep this post updated as and when, through his treatment journey. 

Thank you again to everyone on this site - it has provided me with so much comfort during some very dark times. 

Hi Sunnysideup.

Fantastic news I am so pleased for your dad that was a great result as I always say "Never Say Never"

Well done please keep us updated???

Prostate Worrier 

Thank you so much Prostate Worrier.  - I absolutely will keep you updated as we navigate through the treatment. I hope your PSA results on the 13th Nov are nice and low and continue to stay low. 

Just as an aside - the consultant today mentioned that had it not been for us having access to the PSMA scans (we are fortunate to live near to London and this was offered on the NHS as routine as part of the original diagnosis) then we would have not known it had metastasised as the spots in his bones were not picked up on the original MRI scan. Because the original tumour was contained within the prostate, no spread to the lymph nodes or seminal vesicles, they presumed it would not have spread to other parts of the body but did the PSMA just to double check. I suppose everything happens for a reason and in some ways the diagnosis of ‘advanced PC’ has meant we have been able to research lots more options for treatment of all the sites affected, rather than just removing his prostate which would not have highlighted the small bone mets. 

Hi Sunnysideup.

Yes fingers crossed for my next appointment and bloods and hopefully I will have the results of all of the scans.

(Bone/Radiation/CT)  and the Radiotherapy that I had a few weeks ago.

Very very busy appointment ahead I must say!!!

Yes you are very lucky as these things can be a "post code lottery"

I wish you all the best for the near future!!!!

Prostate Worrier.

Hi Sunnyside

That’s so good your dad is able to access the RM. Wishing you and him all the very best. 
Are you able to send any info please about the trial you mentioned. My OH showed nothing on bone scan but PSMA identified 2 ‘suspicious’ hot spots on T5 & a rib.

thank you and all best wishes x