Post Prostate Radiotherapy Side Effects Treatment?

Hi

thanks for your input, Im on tamsulosin also, Im sleeping reasonably well at night. Im wondering if theres any other medication other than ibuprofen / paracetemol to ease the peeing which is seriyosly unpleasant.

thanks 

Hi

Thanks for the info, all good to know. Spoke to nurse today and basically I’m at 2 week period ish! She basically echoed a lot of things mentioned on here, saying it should have hit its high point (Radiation Cystitis) and start to ease off. Anybody else had this and was the 10 to 14 days a good estimate of it easing off

Hi GaryW

I've just passed the two week point after my 5 sessions of SBRT on the PACE NODES clinical trial in Guildford. The first week was pretty rough, but I soon got over the bowel issues. The second week I continued to get a lot of the old 'radiation cystitis' when I couldn't empty my bladder fully. I've been taking Tamsulosin after dinner, about 6:30pm, and, before it kicked in, around 10pm, was the worst time.

Miraculously though, I have had a couple of better evenings and am feeling the irritation less now.

So, in answer your query - early days but after two weeks I'm really seeing some light at the end of the tunnel  .

Best

BitO

Hi

Let me share my exp. I have taken salvage radiation post RP due to biochem recurrence.

In my case around mid way through my 6 week treatment i had two problems. One was burning during urination. Second was burning while passing stools.

When i discussed with my doc, i was told this happens in almost all cases and it is transitory.

So i was advised lots of fluids, water mainly stay off aerated drinks. Here in my country we are prescribed a med qhich basically neutralises the acidic ph of the urine and alleviates the symptoms.

Regarding my other side effect which was more painful, i was given a gel to apply locally. Basically its lidocaine or xylocaine which acts to numb the rectal area.

This two areas get affected coz they are somewhat in the line of fire with respect to the radiation, however targeted tbat may be.

I also had a brief bout of loose motion which again was due to the irritation to the colon

But dont worry these side effects will go away in afew days orfew weeks once ur treatment is over.

Be strong, god bless you

David, Gary,

Congrats Gary for getting through the 20 sessions of Radiotherapy.  It's almost 3 years since my Radiotherapy.  I remember it was the severe fatigue that affected me most (from about 1/2 way through the 20 sessions).

My peeing was what you described for yourself.

It's now 3 years and I'm still having issues (lots of other medical issues, lots of other medications).

I totally agree with what David said:

David2017 said:

I know it sounds counterintuitive, but increase your fluid (water) intake even though your head is telling you to reduce to stop the pain.

I still find it hard to drink more fluids because I know the more I drink the more I pee.

Finally got some Tamsulosin from the hospital.  Hope it helps me.  At my local Prostate Cancer Support Group at Maggie's in Newcastle, loads of the guys swear by Tamsulosin.

It might help you too!

Hi

thanks for all the inputs, its appreciated. After around a month my passing urine pain has decreased dramatically. Im now only getting little spans which I hope will fade. I'd like to agree with the guys that stated changing their taking Tamsulosin to the evening instead of the morning made a big difference. It meant I was getting a lot more sleep at night. Im now in the waiting for my blood test period, due the last week in November. Im feeling generally pretty good which I hope continues. I'll update with my result late November early December. Thanks again everybody for your input.

This is a bit odd but since radiotherapy over 12 months ago I get an itchy penis.this seems to start when I have passed urine.A bit embarrassing when in company.I am 77

Good Morning Bender 

Are you still on Hormone therapy - because that gave me the urge to scratch everything including my penis?

Best wishes - Brian.

Hi Bender , I haven’t experienced this myself, but RT continues to work for a while.  I would check it out with your team or GP as it sounds like you have an infection. David

Hi. So i am also a prostate ca patient, having undergone surgery and radiation. Now on ADT.

So as far as RT goes, definitely it has its side effects. In many cases the side effects like burning during bowel movement, during urination starts around the 3rd and 4th week. Sometimes the side effects start after the therapy.

In my case I had serious issues in bowel movement. I had to apply the gel like lidocaine etc for pain relief.

Even now i do have bouts of inflammation. For burining during urination drink lots of water, ensure that the ph of urine is not excesively acidic.