Degarelix

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Just had my 3rd monthly Degarelix injection and had a worse reaction than the first 2.

The pain and swelling at the infection site is bad but I felt absolutely terrible about 6 hours after the injection. No specific pain, just felt like s*%t.

Feel a bit better this morning but not good.

The selling has increased and the pain is as bad.

Will mention it next week but rang 111 just for piece of mind.

Had an orthopedic appointment last week and he told me I will have to have metal plates fitted on my fema and thight bones as its spreading into those bones and I will be prone to unexpected breaks. No more rugby or x country running. As if.

6 appointments over the next 8 days. Even one on a Saturday evening at 7.30pm.

Chins up and keep fighting.

  • I would need to mentor them, the first one at my GP surgery I had to show the online video to the nurse as she didn't know how to do it (second time she was slightly better), then because there was a mix up the next one was done at the hospital when I had my Docetaxel, the nurse who administered it also hadn't done one before and instead of reading the instructions shook the vial as though making a cocktail and I had to tell her to stop, then explained the correct way to do it (she didn't seem impressed) as you can imagine it took a long time for the foam to clear before she could inject it and even though I said it has to be done slowly it wasn't, that one was very painful within an hour and lasted for days. Hence why I'd be happy to do it myself 

  • I heard just recently from an oncologist that the common skin reaction to Degarelix/Firmagon is due to getting some injection fluid on the skin surface. I can't say if this is true or not, not having had Degarelix/Firmagon myself.

    I did my own HT injections, although that was Zoladex in my case. I was on it during COVID lockdowns and it was simply getting too difficult to get the injections at the right time, so I switched to doing it myself. Nurse watched first time. I would email in the batch number, expiry date, and location - left or right abdomen, for them to put in my medical records. That worked fine.

    Much as I had no problem injecting the rather large Zoladex needle and it didn't hurt at all, I still look away when I'm having a blood test...