Post Surgery

I said I wasn’t going to post again until I had my catheter removed but… op day +3 I’ve just had my first bowel movement in 75 hours & 12 minutes - it left me with the feeling of needing to pee again like at the beginning… but just this simple thing has made me feel so much better, almost instantly

I’ll be back later next week after the catheter removal to report on that and how I’ve been

Best wishes & good luck to you all

John

Good Morning John

Well that's some good news - everything is working well now. Don't worry about the catheter removal - it's painless and it's such a great feeling knowing you can pee again (I should know - I had one for 10 months !!)

Thanks for keeping us up to date.

Best wishes - Brian.

Thanks for these posts .helpful to know what might be coming .whilst still waiting for a date my surgery looks like being in August due to waiting list at the Freeman ,Newcastle. this has been going on since my PSA  test reading of 17 on 19/4 )

MRI was non diagnostic due to hip replacements so straight to biopsies . 16 out of 21 positive . 3+4 so a Gleason 7 .

told that due to biopsies nerve saving was not recommended !!’ Oh well , better to be here for , hopefully, longer 

Well done John a great positive response to the surgery.  I am now19 weeks post op and apart from the ED which is the next hurdle to over come I'm pretty much back to normal.  Walking an average of 16,000 steps a day, playing tennis,  doing yoga, pump classes but crucially doing pelvic floors daily. So to echo your message we can beat this thing. All the best BM 

I have an appointment with urology department next month to look at injections and using a pump to combat Ed so will feedback on here at a later date.  Cheers BM

Hi Magpie

pretty much the same as me, diagnosis given on April 5th with 13/18 Gleason 7 (3+4) but I got to save the nerves on one side so Viagra will help my ED given time apparently. But you’re correct overall what matters is being here at the end of this, if there are prices to pay….take my money.

All the best for your op next month

John

Hi Johnyboy

I have been reading through your thread with interest. I have decided on the surgery route. Your story and those who have added to it is so helpful. Look forward to updates. Thank you. 

Hey Ras

Im just saying it as it happened to me and how I feel my experience has been, everyone’s will be different in some way but if my journey has helped you make a decision, im chuffed for both you and me

Ill be back on here next Wednesday pm following the removal of my catheter removal.

My posts are not recommendations but simply telling my story, maybe not for everyone, but if it helps someone to clear the fog of what way to go because of the way I write, I’ll keep on posting my journey.

Best of luck Ras

John

Hello John (JohnyBoy) 

Everybody has a different journey but we all want to get to the same destination.

The more people who document their personal journey, the more informed those who follow later are.

Crack on John, you are doing a grand job.

Best wishes - Brian.

Thanks John 

Trying to. be  philosophical about it . Who knows, he may find it is possible but I’m prepared for it not being .