Update
I had a consultation with the Oncologist at the freeman on the 6th June PSA Blood test was taken and the level is now 4 down from 96 in February which is great news. I also signed all the paperwork to undergo the treatment set out for me.
I have since started ApalutamideTablets (4 tablets daily for the rest of my life) Its still early days but I don't seem to be having any adverse reactions / side effects.
Is anyone on the forums taking Apalutamide as part of their treatment plan? I would really like to hear your thoughts / experiences with Apalutamide.
Thanks
Ian F
Original Post
I don't know where to start with this as I haven't a clue where I stand at this present moment in time.
to cut a long story short,
In January my local Doctor took a blood test from me the result of which was my PSA level came back at 6o odd. This was to rise to 90 odd a fortnight later at my urology appointment.
since then I have been for MRI, Bone and CT scans which all indicate Prostate cancer.
Since then I have had a local anesthetic Biopsy procedure (23 samples were taken from my Prostate), which to everyone's surprise came back negative, I was told by the Urology nurse that this can happen as the cancer could be deeper rooted and they didn't get the sample they required.
I was then sent for another Biopsy procedure this time under general anesthetic, (nearly 3 weeks ago which they took another 23 samples from my prostate)
I have just had a call from the Urology nurse this afternoon telling me that the second lot of biopsy's have come back negative once again.
Has anyone else been through the same sort of situation
I am in turmoil here, I was just getting my head around my Prostate cancer situation but I'm beginning to fear the worst,
Thanks in advance for any advice.
UPDATE -
I have been to see the Consultant Urologist at the Wansbeck today
He informed me that I have an extremely rare case indeed, where 2 separate biopsies have come back negative but the scans have shown a spread to Lymph nodes and Bones.
The cancer is high up within the prostate and into the seminal gland. so deem that no more biopsies will be carried out. The cancer is Stage 5 and has spread outside the prostate capsule and into my lymph nodes, The bone scan revealed that it has spread to my Femur, Tibia, fibula and Skull.
The consultant told me that due to the extent of the spread I've probably had this for 2 to 3 years undetected.
The positive is (if there is one) No Radio or Chemo-therapy is deemed suitable and the treatment will be in tablet form, along side the 6 monthly HT they did mention the names of the 2 different types to be prescribed at my Oncology appointment but there was a lot to take in at the time.
will keep you posted
Ian F
