Oncology appointment

Hi G12,

My husband treatment is HT Zoladex + Enzulatemide. I do not know about Abiraterone. He also had RT just finished 6 sessions of 36gy.

He has nodes involved as well as pelvic bones. Half of the people here got nodes involved and have RT so not clear who told you no RT. 

As for the side effects of Zoladex, it takes about 10 -12 weeks to raise its ugly head.

He is 6 months on enzulatemide and zoladex. He is tired but live life to the full ( almost, with ED)

Good luck next week!

Lots of love

Dafna

I agree that if in the nodes Radiotherapy still an option unless distant nodes then I think no

Regards 

Steve 

Dafna

Thanks very much , it was the urology consultant that told me that. I guess each case is different from the scan, not sure. My lymph node involvement is also in the lymph’s slightly above common iliac nodes they said 3 of them apparently.

interesting they offered him RT and not Chemo, seems to be variation out there.

Ah right I’ll watch out for those side effects kicking in! 

from what I read Enzulatemide is more or less the same as Abiraterone.

glad to see your positivity shine through! 

G x 

In my iliac nodes 3 of them, maybe that was the deciding factor.

Could well be, sorry to hear, Chemo probably best although clinical trials on immunotherapy look good

All the best

Steve 

Thanks Steve, yes think I’ll ask him about possible trials. To be honest I would rather have chemo, systemic. The nurse specialist said to definitely have chemo if it’s offered “clean things up” as she jovially put it

Yes, I think the latest Chemo massively different to the old Chemo offerings 

Good luck

Steve 

Hello Grantyo12 

As a bit of an aid - here's our guide on what to do and ask at your meeting - just make a list of questions as they affect you.

https://www.macmillan.org.uk/cancer-information-and-support/treatment/your-treatment-options/questions-to-ask-your-healthcare-team

Best wishes - Brian.

Hi Grantyo12,

On the question of Abiraterone. One thing I do know is that if you go for Abiraterone first and if later you want to change for whatever reason, you can then switch to Enzalutamide, but dont think you can switch from Enzalutamide to Abiraterone so easily.  (double check that with the consultant) So for that reason alone I would push for it. You do have a steroid with it, partner seems ok with 5mg rather than the10mg. This helps with side effects and fatigue. 

Keep positive

L

* Also I believe, Abiraterone has the ability to stop your body from making a "false testosterone" Which could be rather handy. Though I don't know if thats actually a common thing or not.?.. 

My knowledge is more about the treatments in North American than UK but what your doctor told you seems questionable so you might want to get a second opinion. 

I had mets in the lymph nodes of my pelvic section and they got radiated at the same time as my prostate, along with a side dish of Lupron + Abiraterone for about 2.5 years.This is pretty much the standard approach where I live for a situation like that.