Hi everyone, I am new here ans just after some support.
2 weeks ago my partner was diagnosed with prostate cancer, Gleason score 9. He did a PET scan privately as NHS not moving fast enough to our liking and sadly it showed that the cancer had spread to the bones.
We are told it isn't curable but treatable. I am just after some testimonials of people living with stage 4 prostate cancer and any tips really.
We are both still in shock but very positive even though the diagnosis is worse than we could have imagined. He is going for the triplet treatment and we are also making some major lifestyle adjustments, although he is already relatively fit and healthy.
His PSA count was 5.2ng/ml which his GP didn't find alarming but still prescribed an MRI to be sure. He also has no symptoms whatsoever. So glad he insisted to have things checked for "peace of mind".
We have a 1.5 yo little boy who loves his daddy more than anything so we are very determined to do everything it takes for him to be around for as long as possible.
Thanks
Hello Majestic. Sorry to hear the worries are continuing. For me, the best words I heard in those first horrible weeks were from the PC nurse specialist:
’ As soon as you take the first tablet ( bicalutamide 14 days prior to decapeptyl injection) the cancer is stopped in its tracks’
Im no PC medical expert, but I can still remember the feeling of relief and my absolute haste to get that tablet into my husband!!!
he was treated with the intention to cure. We monitored and ‘pushed’ politely for appointments all the way along - letting the hospital know we were prepared to take short notice cancelled appointments.
his timetable was
June 2022 elevated PSA
July repeat PSA elevated
August MRI
Sept scan results - cancer
Sept/ Oct biopsy , bone scan ( clear)
Nov 3rd start hormone therapy
Dec - oncology consultation - opted for RT
Feb/March 20 factions RT
Last week - 3 months since last HT injection - no more for now. PSA review Oct. If PSA raised then scans and more HT. If not raised, then just 6 monthly reviews
you probably don’t realise it yet, but, if you are like me, you are over the very worst - ie you’ve got to the end of the diagnostic pathway - you know the score. You have started the HT - cancer stopped in its tracks and husband safe for the time being. Just waiting for the plan to give the cancer an almighty wallop to kick it into the long grass 
re asking questions - do feel free to fire away! In the early stages it feels like you’re in a minefield - blindfolded! Knowledge brings a sense of control and power!
HTH - hang on in there - you’re doing all the right things!
