Metastatic prostate cancer

• I can’t thank you all enough, just hearing other people and advice is tremendous.  I’ve so much to ask but I’m afraid I would be writing all day. I do feel positive at times and I am aware it’s early days but I think it’s the unexpected that’s really bothering me. We’ve not heard anything since diagnosis and that’s a worry.  I’m sure the letters will come flooding in soonThankyou.

Hi Majestic,You’ve certainly found the right place for advice as everyone has that wee input that helps,I’ve found it easier at times to get advice as my Wife is worried as well ,keep positive and although we have down days most days are good,sending hug’s Robert 

Thankyou Robert, I’m just wishing I’d found this forum earlier, I feel as if a very dark cloud has lifted, just knowing people are there to listen and give wonderful advice. It is helping so much.

Hello Majestic 

A belated warm welcome to the online Prostate Community from me - I am so sorry to find you here. I can't understand why people have been "bigging me up" in the earlier posts - I am just a normal bloke with Prostate Cancer,

Anyway - we are all here for you - it's OUR Community and YOU are more than welcome. Don't worry about asking questions - there's always someone here with an answer - how ever trivial it may be - we are here for you 24/7.

Feel free to express your feelings - we have that bond and it affects us all - the family - everyone - nothing is taboo here after all it's something very personal and all us men have lost our dignity so any problems- bring them on!!

A bit of housekeeping if you don't mind -

* Here's the link to join our little band that will get you here quickly-

 Prostate cancer forum 

* To help us help you - can you update your journey on your profile - to do this click on the icon of the chair on your home page - then "profile" and then "edit". You can read mine by clicking on my avatar (but you don't need to write a book!!). 

Like everyone on here I have that positive attitude - that's half the battle - and I am a "lucky boy" with my journey. 

If I can do anything for you please let me know.

Best wishes - Brian.

Afternoon Myrtille, really sorry your here, my husband was diagnosed on March 12th.

He has advanced prostate cancer and has been told not curable but treatable, he had his 2nd round of chemo last week and is doing ok with this,  he is on hormone tablets and injections also steroids which has unfortunately his triggered diabetes  just to add to this list .

It is a sharp learning curve and I understand only to well how you feel.

Everyone here is so supportive and helpful.

Thank care of yourself as well as your husband.

All the best.

Thankyou so much Millibob. Your kind words have meant so much. I will try and upload our short journey as I’m not much of a tech wiz but I’ll give it a go. The support off everyone has overwhelmed me. The loneliness over the past few week on this journey is starting to diminish. Thankyou all again.

Hi Myrtille,

Many people on this community had chemo and sailed through it. What I learnt in the last 6 months is not to worry too much and it does help to deal with this situation.

Just to say that we are planning our holiday for September. 6 months ago it was inconceivable.

There is life around the corner.

Lots of love

Dafna

Hi Majestic , we have all been where you are and it isn’t fun, but things do get better.  Feel free to ask any questions. Best wishes. David 

Thankyou David, that is so kind of you, I do have a list of questions waiting in the wings. Just don’t know where to start without sounding stupid. You all seem that knowledgeable and very updated. I did google at the start of this journey but went into shock. Never again. Thankyou.

My hubby  Cancer is also not curable but treatable  He started with chemo first then radiotherapy

He had 3 monthy jab but now it is 6 months,

He had 2 PSA s since  the 1st one down alot next one up very very slightly nothing to be worried about,