Good evening you lovely peeps.I haven’t posted in a while as have been on a bit of a dark path for last few months.So as my bio ended with the oncologist telling me your pc is incurable but manageable,I was sent on my way with the first of 2 months HT ,2 weeks in and kind of got my head around well this is it.Then 3 weeks after starting my HT I get an unexpected appointment to see the urology department and specifically a consultant surgeon,at the meeting I was introduced to a very up beat very confident surgeon who sat me down and told me that he had looked at all of my tests and scans and said to me because of my age and fitness I can remove your cancer with a curative outcome,well to say I was speechless I can’t put in to words.so we agreed a plan and the surgery date was set.So to fast forward to today 02/05/24 I’m now 11 weeks post surgery and I’m doing great.so after the surgery i was told I would get the histology results in 9 weeks and that happened today ,I’ve been told the surgery was100 % successful full clear margins and removed 3 lymph nodes that were tested and found to have no cancer involved I can’t even begin to describe how happy I am for as long as it lasts.so what I wanted to say is if you get a diagnosis of advanced locally spread PC just ask the question can I have surgery and if not why not,taking no for a answer is not always the right one.
My initial diagnosis was psa 7.2 ,grade 5, Gleason 9, T3b .M1. N1. Then after surgery and histology was grade 5 Gleason 9 T3a M 0 N0
Keep fighting good people of macmillan
P.S I also became a grandad amongst the chaos
Wow! What a fantastic outcome! I’m so very pleased for you! Thanks for sharing and well done on getting through the darkness!
Hello Jonny five
Well that's am amazing story I am so pleased for you and your wife. I think you have come across one of those surgeons who likes to push convention and see what they can do when the odds are against you . It's possible as your bone scan was clear and the only potential spread was the pelvic lymph nodes.
I am a Gleason 9 T3aN0M0 and was told at the outset surgery was a big NO (I am a wimp anyway so it would have been off the menu) and it just shows how a diagnosis can have a different outcome and interpretation.
Thank you for your informative post - keep on with the recovery and please keep us updated with your progress. Those two words "curative pathway" make all the difference.
Best wishes - Brian.
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This is JUST the type of story and outcome we need!! Remember, a Gleason 9 on the pathology bench is the same as a Gleason 6 (I.e. no longer relevant as it is out of your body). Keep the faith and let’s hope your PSA remains a big fat ZERO. Thanks again for posting. AW
Thank you Robert,all the very best with your treatment.look forward to hearing your future good news.
Thank you AW all the best for the future.
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