I'm on a journey. After experiencing some degree of nocturia for some time I approached the GP. I had a DRE which found my prostate to be smooth and Initial PSA in late December. was 5.99 going down to 5.5 a month later and subsequently up to 6.25 after a further month. This finally triggered a fast track referral to the local urology department. It felt like the initial DRE seemed to have triggered more acute urological symptoms of frequency and urgency alongside the regular waking in the night. I felt lucky to get a cancellation with urology and was seen within 2 weeks of the referral.
I was retaining urine and a further DRE was felt to show a benign prostate with a degree of enlargement and inflammation. I was treated for prostatisis with 2 weeks of antibiotics and commenced on Tamulosin. There were some positive charges but my symptoms got worse again when the course finished. My PSA was up to 8 when repeated and I had a MRI scan which has shown 2 lesions one a 2 the other a 5 and am now going to have a biopsy.
Being a 5, I'm definitely very worried. 62 and loving life! I know I have to wait for the biopsy but need to share. My wife is incredibly supportive and I know I need to be positive but it's not always easy.
I have an ache in the pubis area which did resolve when taking the antibiotics but has now returned. I'm conscious everyone here has a journey and I take comfort in sharing mine. Thank you.
Evening RS1961 I’m the same 3+4=7 mines is contained in the prostate well it was in January,but I started HT a month ago and get my 3 month jag next Wednesday,then start RT in August hopefully,I can’t have the surgery as I have Rheumatoid arthritis ,hopefully you’ll get started soon on treatment whatever they decide but the final decision is yours,they wanted me to stay on AS but that was a no no from me as I wanted it treated,our other half’s are amazing and my wife takes the stress for me at times,take care and keep positive thoughts as it makes a big difference
10 July. I have seen the oncologist and surgeon now and made the decision for surgery. The urologist felt my urology symptoms could be worse with radiotherapy. The oncologist leaned towards surgery, joking he was doing himself out of a job. The surgeon has inspired a confidence which I hope will not be misplaced. I have been made fully aware of the potential for ED and continence issues but am keen to just get it out! Hope I don't regret it!
I was given an oncology appointment to discuss radiotherapy on 29/7 ! (From request made following discussion with surgeon in June) . Made my decision on same basis as you without Radiotherapy input ( just research and surgeons comments ) following confidence building meeting with surgeon last week
good luck with your op
I have just read through some more of the posts which have got me slightly concerned . As I stated before I am 3+4 Gleeson 7 and the surgeon does not advise nerve saving surgery as the C could be right to the wall . ( the MRI’s were non diagnostic ) given that others with my score have been advised to have RT /HT owing to potential breakthrough. At this stage I think I’ll just have to trust in the surgeon being content to proceed
The surgeon said he would try to save one side of the nerve bundle but the other side biopsy indicated risky margins if left.
All the medics to date have said it's pushing but not broken through. Fingers crossed they're right but they've been quite insistent.
Hello again RAS1961 , you may remember my comment earlier in your diagnosis. For what it’s worth, I think you have chosen the correct pathway to surgery given your relatively young age and the fact you don’t want to worsen your previous urological symptoms. Let’s hope that it is completely contained and you are a T2 after all - in which case surgery should provide an early confirmation (after pathology of the removed prostate gland). Have you had a date for surgery yet? Good luck! AW
Thank you AW. He said they'll aim for September but no firm date. One month light duties, catheter for a short period etc. He also said I can't ride my motorbikes for quite a period or bicycle! That will have to be another thread I guess
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I do worry a little that the length of time between MRI, biopsy and treatment could increase the risk of breakout but both the surgeon and oncologist said it was a slow grower and unlikely.
My wife as ever has been amazing and with me all the way. Wonderful lady.
Hi RAS1961 - another bonus is that, after having previously had urine retention and difficulty in that area, after the operation you will be peeing like a teenager! Don’t forget plenty of pelvic floor exercises between now and September though, because you will be reliant on that muscle. Men usually co-rely on the sphincter at the top of the prostate gland, but I think that this will be removed with the gland. So, in most men, they don’t use the pelvic floor as much as women. So that muscle needs a good training programme before your operation (and afterwards, too). AW
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