All Systems Go

Hi Ww
Do you know I think I am an example of why you shouldn’t keep reading things in pursuit of answers because I don’t know what I’m reading and I’m probably being selective in the wrong way. 
I found the piece, but have also seen another that says .1 . So it just proves me that things are an ever changing state of play we are all different. And I definitely need to get a grip! 
I researched - “Post RT nadir with ADT”  there’s several medical opinions if you want to take a look. There’s some recent research .

yes sun is shining ! Let’s get busy xx

Lx

I took this as a challenge Lorraine. I have attached an article from a meeting in 2023 which also says 0.1 is the indicator level for localised prostate cancer, but it is also dependent on whether it got there within 6 months when on combined ADT and radiotherapy. The expectation for radiotherapy on its own is slower but if this level is reached then it is a good sign. 

https://dailynews.ascopubs.org/do/psa-nadir-6-months-after-radiotherapy-strongly-prognostic-long-term-survival-patients#:~:text=For%20patients%20with%20localized%20prostate,and%20overall%20survival%20(OS).

Also for locally advanced prostate cancer I have found this which suggests that if the PSA has been reduced to below 0.2 prior to starting radiotherapy then the better the long term results.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6854218/

Ah, you are the best ! I will take a look later and indulge myself.  At the moment I am supervising hole digging by Mr Bw for my plants and as we know from mstev2  it can be a very fraught business
Thank you x 

Hi L,

Just to say that I was the same in the first few months after diagnosis. No head space for anything else. I have changed and in the last two months we put it aside and trying to live our life as normal as possible. And when I have wobble I just post here and someone like David2017@ or Eddiel@ put me at ease. I am comparing our life to a year ago and it is very similar. Jacob made it clear that we need to live and stop thinking and probing about it all the time.

Lots of love

Dafna

Hi Dafna 

Thank you, Jacob is right x 

Hopefully you have got Mr BW similarly trained for domestic duties.

Hi Dafna, I’m hoping once we speak to the oncologist and have a plan we will start living our life’s again as right now it’s just a chore . Every ache I’m just worried it’s C. He’s terribly constipated and again I think it’s spread . I went to our local pharmacist and he has given me some meds for him . Soup pot on with lentil soup and he’s having rice & prunes for dinner . We will try this first and if not it will be meds . Yes everyone is so supportive and I’m thankful for it all . Xx

Hope that gets things moving Liz. Try porridge in the morning, or overnight oats made with Greek yoghurt, then topped with strawberries- that really boosts the gut flora.

Hi, I read the links, loved the first one! not too keen on the second because BW never got down to under .2 before RT,  but saying that he may of got there given a bit longer with the Abiraterone,  so I'm going to glaze over that bit . But way much better than what I've been reading!

Thank you 

Hello Lorraine {BarryW) 

Yes, I think I am turning into a  too!  I have read through the two links and wish I hadn't!!

BW said:

never got down to under .2 before RT,

I am still not there at 12 months post RT and have my nadir PSA test on 14 August, my last one in February was 0.33!!

Still as Alwayshope says, "there's plenty of tools in the tool box".

I am wondering if I should change my strapline to Doris Day's "Que Sera Sera" but to be totally honest with you after 30 months I have given up worrying. Mentally I am in a great place (don't ask about physically - but I am getting there).

Life is for living and when you have had a "wake up call" every day is a bonus.

Oh and before you ask the Cava is still unopened in the fridge - but not for too long!!

Kind Regards - Brian.