Erectile dysfunction after prostate cancer

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Hi I'm lee I was diagnosed with prostate cancer in March 2022 ive since had radical prostatectomy and then I had 7 weeks radiotherapy and then hormone therapy my erection hasn't come back has any one on here had the same amount of treatment as me and managed to get there erection s back .

  • Hiya Lee. I'm not post op but, I've had a similar issue. 
    I was diagnosed just before Christmas and was put on hormone treatment very quickly as my cancer has burst out of the prostate and, although it hasn't spread - according to the scans - it is very aggressive, so starving the cancer from the testosterone was the first stage of treatment. I noticed a lack of erections and some 'shrinkage'.  I lost almost an inch after a couple of weeks so, I was put onto the 'pump clinic' who gave me a vacuum pump. It was a bit embarrassing to pick it up from our regular chemist and a bit  of a chore at first , going up to the bedroom for a pump session but, i soon got into the routine of doing it 2-3 times a day.  After only 10 days or so, the shrinkage had started to reverse and erections were staying.  I was supplied some silicone rings - yep 'cock rings' - with it but, I found them very uncomfortable so, stopped using them and I'll discuss that next time I see my assigned MacMillan nurse. I'd advise going through the cancer dept as I believe that it can take an age, going through the GP

    Hope that helps

    Axel

  • Have they prescribed Tadalafil tablets?  They are similar to viagra.  Taken as a low dose daily (5mg).  This keeps blood flow going to the penis.  Worked for me.   AW

  • Hello  - Lee - A warm welcome to the online Community.

    Prostate Cancer UK have a cracking guide to this issue - along with details of how all the various treatments work - the link to this is here:

    https://shop.prostatecanceruk.org/our-publications/all-publications/sex-and-prostate-cance

    I hope this helps.

    Best wishes - Brian.

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  • Hi I’m 14 months post op and ED still there also incontinence is a big problem for me 

  • It’s normal to feel worried about erectile dysfunction after prostate cancer. A lot of guys go through it, and it’s a big change. It’s worth chatting with your doctor about it. I’ve heard that viagra can be super helpful. They can give you the lowdown on how it works and if it’s right for you.  From what I’ve seen, some guys find it works well. It’s not just about sex either; it's about feeling good about yourself and maintaining intimacy with your partner. It might take a bit to figure out the right dose and timing, so hang in there.  Also, don’t hesitate to look into other options and maybe even some lifestyle changes, like exercising and eating healthy. Sometimes those can make a difference too. Remember, you’re not alone in this. There’s a lot of support out there, so reach out and don’t be shy about asking for help. 

  • Laurenttrevino,

    I wasn't that worried about erectile dysfunction.  I'd had the Hormone and Radiotherapy treatments and by the end of the Radiation treatment my libido was non-existant.  So I never even thought about what I couldn't do!

    Now, 2 years into Remission my libido is returning but that's about it.  I don't regret getting the treatments.  My take on it is "if it comes back, all well and good" but if not, "it's not the end of the world".

    Raaid, hope your incontinence is getting better.

    This forum on Macmillan has really helped me, also attending a Prostate Cancer Support Group at my local Maggie's is a great way to talk things through with other men all in the same situation.

    Steve (SteveCam)

  • Hi there,

    I completely understand what you're going through, as I've been through a similar situation. After my own treatment, I experienced erectile dysfunction as well. My doctor prescribed me Cialis (Tadalafil), and it's been a game-changer for me. The great thing is that you don't have to take it often, as it works for a long time after each dose. It is also important to use only high-quality Cialis from reliable pharmacies for the best effect and minimize side effects.

    That said, I really recommend consulting with a specialist. They can give you tailored advice based on your situation, and there are plenty of options to help restore function. Stay positive—there’s definitely hope ahead!

    Wishing you the best on your recovery journey!

  • Lesterrr, I'm on a big cocktail of tablets and am not suitable for the Tadalafil.  I am hoping for it to come back in it's own time.  You never know!

    Steve (SteveCam)