HORMONE TREATMENT SIDE EFFECTS

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Hi all.

Im Gleason 5+4. I’ve been on Bacalutamide for 3 weeks and had my 1st 3 monthly injection last Wednesday. Apart from a few days after injection where I felt a wee bit “foggy” in the mornings I have felt fine since. Played golf last week and again today and I am feeling fine. Will side effects start to show after a period of time or am I the lucky one??

  • Hi Wifey, I would dearly love to tell you that you are the 'lucky one' and, indeed, hope you are! However, for my husband the side effects crept on slowly. There was not a sudden leap into side effects more a gentle crawl for him!

  • I too would dearly like to say you are a lucky one. When my husband first commenced the HT 9 months ago, he to was absolutely fine. However, he now gets forgetful (so much so we now have a wall planner) he also gets a foggy brain. I also have to repeat what I am saying all the time. I also feel sometimes I am now doing the thinking for him, but do you know to still have him with me (Gleason 8, Aggressive Prostate Cancer which has spread to his bones and lymph nodes) is amazing and we try and take all the above in our strides and stay positive. 

  • Hi Fifey, please see below my reply to Worried Wife (sorry I should have replied to you) . See I am just as bad Blush

  • Thanks for reply, I knew it was hopeful thinking! 

  • Thanks to everyone who replied, much appreciated. I’ll post next month and let you all know if I’m the lucky one or not!

  • Hi Journeyone - it sounds as if your husband and mine are having the same side effects! Horrible to watch, isn’t it? The weight gain and hair loss is very obvious too. We are hoping he has now just had the last HT injection. This will be discussed at his next PSA and oncology review in May. Fingers crossed! Butt, as you so rightly say - at least they are still here with us! I guess it’s what we signed up for ‘in sickness and health ‘ ! I am actually very proud of his stoicism. 

  • Hi fifey

    I started 3 monthly Decapeptyl January 2022 and only symptoms I noticed were hot flushes which I am now used to and sometimes I don’t even notice them. Didn’t get any weight gain, but I try to keep active. Good luck with your treatment

    David

  • Hi Fifey,

    As WW said the side effects take time to creep in. My husband is on HT for over 4 months now and the side effects started two months after treatment started. Hot flushes and fatigue. The hot flushes come and go few times a day and mainly at night. He started acupuncture which seem to help. The sage tablets did not help him, I know it help many other members here. Saying all that, he has almost normal life, very active, swim everyday and now go to the gym as well to keep weight off. Oh, people mentioned memory problems - well he never had a good memory so I do not count it as a HT problem.

    Good luck with everything

    Dafna

  • Thanks David, you’ve given me hope.