Diagnosis of both bladder and prostate cancer

Hi Alwayshope,  as a fellow sufferer of bladder and prostate cancer thank you for the info it's much appreciated

All the best Duncan  

welcome I am unable to help you with your question but just wanted to say hello and to let you know what a great supportive group you have joined. Never feel afraid or embarrassed to ask a question.

Hi Duncan.

A warm welcome from me as well. This is why these forums are so brilliant, they bring people together with a similar diagnosis and hopefully share their journey. From having no one with a concomitant bladder and prostate diagnosis we suddenly have two. Your stats are similar to those of Otley so I am sure it would help all of us know why you have chosen your particular treatment route of BCG and separate prostate cancer treatment. Please come back with any questions.

Guess l should come out of the woodwork 

l had psa 3.2 Gleason 6 told to do active surveillance only 53 had to get it out of me

2 months later got it removed pathology report 0.02 but bladder metts tumor size 27 mm perennial invasive within prostate l was told that l made the right call in listing to my brain my surgeon said l was lucky

last 15 months 0.02 so all good 

but allways thinking of the next treatment with the outer bladder muscle wall

Have been told they can radiate it

Then been told they can not

anyway following this thread

Good Morning Needing luck  A warm welcome to the Community - even though you have been "lurking"  for a while. You appear to be another member of the "lucky boy club", and I am please it's going well for you.

The good thing about this forum and others on the Community is that they are read and provide information for people who are not Community members and are just "ghosting" through. Last year the Community had over 6 million page views so we must be doing something right!

Best wishes - Brian.

Thankyou

Hi Needing Luck.

Welcome. Please feel free to contribute if you want to or just to glean information. It is our group and everyone is a valued member of the community. You have a different pathway of treatment to Otley and Drunkley as your mets are being controlled by treatment to of the primary prostate cancer which is brilliant and long may it continue. My husband also has metastatic prostate cancer but his is behind the pancreas and difficult to treat. We were also initially told he could possibly have RT , now they are not so sure.so it is 3 monthly scans and PSA tests to check status of the cancer and get scanxiety until we know the results. Keeping positive helps release your bodies own healing mechanism so keep well and active.

Thanks again Alwayshope, I have been lurking for a few weeks but not posted before,

My consultant advised me to try this route to try and save my bladder ,but now after 2 TURBTs and the initial 6 bcg treatments just found out cancers back so back to square one really.  

Now waiting for another TURBT then wait for results and another meeting of MDT to see what's next , it's the waiting that  I don't like

But this platform really does help thanks again  

Dunkley, I am so sorry that you are still on a rollercoaster with regards to your bladder cancer but it sounds as if you have options. It is good that you are on hormone therapy for the prostate cancer as this is starving the body of testosterone and giving you time to sort the bladder cancer first.

1. Hello.Yes I was diagnosed with superficial bladder cancer and prostate cancer in 2016 .They wanted me to have my bladder removed but as it was a low grade badder cancer that could be treated and cured I had the treatment Mytomicin not BCG instead  and have been clear of bladder cancer ever since 5 full years now going on 6 .My prostate was removed in 2020 as after having been on active surveillance for 4 years my PSA was rising rapidly .The surgery failed to remove all the cancer and I had salvage RT and have been on Enzalutimide as first line treatment and ADT for the past 4 years my PSA dropped like a stone on the HT treatment and has been undetectable for the past 4 years .I see my consultant this Thursday to discuss my recent yearly scan results and where we go from here ,it is quite possible they may take me off treatment to see if I am cured .This is the first face to face consultation for 3 years and I am concerned about coming off the treatment but know I dont want to be over treated which might be the case if I  remain on it .It is not unusual to have both prostate and bladder cancer at the same time and the doctors quite often wany to remove the offending body parts .But as you see Im doing well after treatment so my adive is give it very careful.consideration before going down the stoma route ,if your bladder cancer is not high grade or invasive then treatment may well work .