Dads Results are in.... ish.

  • 17 replies
  • 178 subscribers
  • 1336 views

Well his 10am appointment

This was the result

He has prostate cancer 

Stage T3b N 0 and M- they can't tell him yet as he has to have a bone scan which has been booked for tomorrow 

Gleason score 9

They said likelihood they won't operate 

MDT next Tuesday 

hormone therapy ans radiotherapy is the probable treatments 

Can't say if palliative or curative but I'm an NHS worker so a stage 3b doesn't hold out much hope DisappointedDisappointedDisappointed

  • Hi K3rry4nn

    That first diagnosis is very frightening and one of the main reasons for that is that you don't really know whats happening and it's natural to think the worse. It's is very much on the cusp of curative or treatable and I guess you won't know until you get all the tests back. If it's possible to get a PET scan before Hormone therapy get one as that will tell you a lot more. Try not to be negative as there is a lot of  hope. Prostate cancer is one of the better cancers to have because it responds so well to treatment and if it's ends up not curative there are plenty of options to keep it at bay and in control for many years. You don't say what age your dad is and what was his initial PSA score at the start? 

    It's really important to stay positive for your dad as he will be feeling very worried. There is lots of treatment and hopefully lots more years to live ahead of him. If he sees you being frightened he will feel worse. Please don't panic at this stage as it will all calm down and you will see how effective his treatment will be once it gets underway. 

    Best wishes LSlight smile

  • So not too high, that' gives extra hopeThumbsup

  • Ahh 26,  thats really is quite low. that's less likely to of gone too far with a bit of luck. Take a breath, try and think positive. there are people here that have PSA's in the hundreds and thousands and they are ticking along nicely with treatment. Hopefully it won't be as bad as you first thought.

    x

  • Easy to say I know but don't loose hope, there is so much that can be done. I was probably where you are now back in may but everyone on here supported me into believing that we could and would get through this and we have.

  • I’m a 3b. My report actually says “3b (possibly stage 4)”.

    im still here. It’s early days, I was diagnosed 18 months ago. I’ve had ht and rt. Yes I’ve had a few issues, mostly bladder urgency, bowel control from rt burning the tube and tiredness/fatigue. But I’m living life basically as I was before. I’d say I’m 75% of what I was. But I’m alive, travelling, living a great life. In fact I’d say my kids (teens) haven’t noticed much of a change. Yes im a bit stiff but once I get going I’m gone!! ED is the worse thing because it affects my wife too. 
    So it’s not too bad really, I’m very lucky. 

  • K3rry4nn

    OK the results could have been better, but they could have been a lot worse.

    You are still on the waiting game, which is horrible, but if it helps I started my journey over 6 years ago with T3b N1 M0  Gleason 4+5.  PSA 74.    It has been a bumpy ride but I am still here approaching my 75 birthday and looking forward to a few more years to go.  Try and help your dad enjoy the good days and ride the bad ones.  I can honestly say I appreciate life more now since my diagnosis and with my wife’s support have had a really good few years.  Stay positive and fingers crossed for no mets.

    Best wishes,  David 

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Good day to you , the results T3 b , I had a second opinion and after 5 months was then told it was checked on scan and now down graded to an A , meaning I’m now going to get treatment for it , just a thought , jonnymac 22

    Cheers , Jonny mac