After chemo

Welcome back Lyon.

We are a few months ahead of you as hubby completed chemotherapy in October. He was taken off Enzalutamide, similar to Darolutamide, whilst having chemotherapy for similar reasons as your husband. Scans and bloods indicated that chemo had worked so our next round is at the beginning of February. Hopefully we will then find out if he needs to go back on Enzalutamide, something else or nothing. We have been warned that more chemotherapy with docetaxel or Cabazitaxel may be necessary in the future. Radiotherapy by SBRT could be a possibility to lymph nodes if they start to get bigger again. RT can also help with bone pain or if there is evidence of the cancer in the prostate area but depends on if you have already had it and at what dose. Beyond chemotherapy there are other treatments available such as immunotherapy, nuclear therapy. So definitely not the end of the line with the chemo.

As to timing, we don't know as everyone reacts to treatment differently. All we can hope for is that we have a break before something else needs to be done. Your attitude is spot on - enjoy every minute of the time you have together.

Hello Lyon  Welcome back - nice to hear from you and it sounds like you are both doing well.

Alwayshope has said what I was thinking - so let's hope the Chemo you have had has done the job and the bone scan is good when it's done in a couple of months.

Best wishes - Brian.

Hello nice to see you back and your private message. Husband has been told since his chemo ended on 17 November that he will remain on the daralutamide tablets for as long as they work, (probably many years) and also the 3 monthly hormone injections. If treatment stops working then other treatments can be given. Interesting you say about the scan as our oncologist says no more scans as they will rely on the Psa blood test as this is so reliable once diagnosed. However me with a bone will be pushing him on this. I can see us having to go private again. X

Thanks so much for such a comprehensive and very useful reply.  As the last chemo of this series is on Tuesday, I'll make sure we ask more this time!  We're already booking trips away and can't wait to get away from the cycle of hospital tests and visits ruling our lives.  Seems to have been going on for ever!

Hi Brian

Good to hear from you again.  It sounds silly, I know, but it's difficult now we're nearing the end of this first bombardment of chemo, to be able to look ahead. and beyond the hospital walls.  I'm pushing a bit to get things booked up (UK only at the mo) as I feel it's so important that we regain as much of our lives as possible while OH is feeling okay.  

Hi Shar  Thanks for your pm and for this reply.  We're online looking for some short UK breaks to start with and I'm already feeling quite excited at the thought of packing a suitcase and getting away from it all!

HI Lyon  I know just how you feel - as you are aware I had an indwelling catheter and leg urine bag for 10 months. We decided it wasn't going to stop us holidaying - we did a long weekend in the UK first - all good - and then booked to fly out to Turkey - well the airport experience was er - different - however we got there.

You two have been through so much you need to grab the cancer by the balls, get your lives back and holiday as much as you can. I can't fault you.

Best wishes - Brian.

We have been to a lovely hotel in goathland, where heartbeat was filmed, called the mallyan spout hotel 5 times now. It is on the moors and so peaceful but a 10 minute walk into goathland and about 15 mins by car to Whitby. We do the 3 night moors explorer which is afternoon tea on arrival, bed breakfast and evening meal and a packed lunch on one day . The good is amazing

 They have 3 rooms with balconies with amazing views that we always book. The standard rooms are nice but smaller 

Should say food not good

Thanks  Shar. Thst sounds well worth looking  at!