Constant urge to go to loo but problems

Sorry forgot to mention, I have been on BICALUTAMIDE 50mg for two weeks now and had my first of two Prostap3 (leuprorelin) injections yesterday.

Hello and welcome Longtom, I am sorry to hear of your diagnosis, I had similar symptoms to you early on my cancer journey with poor flow often for only a second at a time, and the less that came out the more painful it was, Longtom have you had a flow and retention test at urology, i was emptying my bladder fully when often there was less than 80 mls in, I see you have just updated, HT can effect  bladder control as it did with me, I was prescribed tamulosin to help with my bladder issues, and it helped a little and as my bowels were a little loose, not diarrhoea, i was prescribed loperamide which i could take as needed. I am surprised the nurse did not recognise the symptoms as bladder issues are quite common with prostate cancer and treatments, Unfortunately frequent night time trips to the loo are common too. I have no idea what "on the cusp of an infection means" things you can do to help yourself, drink plenty of water, decaf or cranberry juice 5 pints a day, no caffeine, alcohol, or fizzy drinks and no acidic or spicy foods. take care, Eddie

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Hello Longtom.

Welcome to this friendly group who are here to help you through your journey. The first thing to reassure you is that you have caught things very early so should be kept under control provided you monitor it regularly. Having already started on Bicalutamide and Prostap you have put the brakes on the growth of the cancer and should find that the PSA will drop very quickly.

Eddie has given you a very good response already and if the symptoms you are describing came on since starting the hormone therapy then it suggests they may be a side effect, although the burning sensation is recorded as being less common. Please bear in mind that none of us on here are experts or medically trained. You need to make sure that you are still passing plenty of urine even if it is poor flow.

You have had a big shock to the system having just been diagnosed with prostate cancer and this will affect your gut and probably sleep patterns, as well as getting used to the hormone therapy. You do need to keep your medical team informed of the problems you are having. They may clear up as your body gets used to them but it could also mean that a different one might suit you better.

Please come back with any questions no matter how small or silly you might think them. We have all done it.

Thanks very much, Eddiel. Appreciate your feedback and take note of the meds you mention to help the bladder. Have been on a pretty strict diet for some time now also due to cough variant asthma and LP reflux diagnosis so no caffeine, alcohol, fizz, dairy etc. but need to up my water consumption. I’ve got a feeling that I have a urinary infection so I’m going to ask them about that tomorrow. They have sent a urine sample off so hopefully will tell me something definite and I agree what you said about nurse’s comment ‘on the cusp of an infection’..weird! Never heard anything like that before! 

Thank you Alwayshope. Very positive words, very helpful and thank you. 

Longtom you are welcome, hope you get some answers from urine test, take care, Eddie