Abiraterone and SABR radiotherapy further info please

  • 5 replies
  • 147 subscribers
  • 483 views

Hi All .

I'm new here , my husband having recently been diagnosed with Advanced PC with spread to pelivic lymph . Gleason 9 Group Grade 5 PSA 7.4  Also undergoing further investigation for thickening of rectal wall seen on CT . No Bone spread . 
Started on Biculutamide 150mg , and due to swap onto zoladex in January 

Due to have further checks for bowel before Radiotherapy treatment , likely the new SABR x 5 treatments.

So a couple of questions if anyone can help , the first around any experience of  treatment with SABR radiotherapy and secondly around Abiraterone treatment which apparently isn’t available on NHS but may be a better treatment ? 

Thanks I advance for support 

  • Hi Really sorry to hear about your diagnosis.

    •  Sorry I couldn’t comment on SABR Radiotherapy 
    • I was diagnosed with psa of 3761 in May this year 
    • I have only had a hormone injection 4 weekly 
    • l get hot flush sweats from these
    • The Arbiraterone I am also on taken with prednisolone 
    • I have not had any side effects at all my psa is holding at 2
    • My doctor said it’s remarkable to come down so much 
    • So I’m lead to believe that you’re lymph nodes can produce small amounts of testosterone the Arbiraterone stops this from happening it’s a brilliant drug.
    • i am in Scotland and it’s available through NHS
    • Hopefully it will become available where you are to 
    • Stay strong and fight everything all the way don’t ever give in to cancer.
    • Take care 
  • Thankyou for your support 

  • It was just to say I was watching the news recently about a chap with prostate cancer.

    He is purchasing Arbiraterone which he said it’s a game changer for him.

    its is costing him £250 for a month’s supply through NHS England.

    And he doesn’t understand why it can’t be available there.

    Ps there’s no way I could afford this myself so grateful that way.

    it will happen for you I’m certain.

    Armie

  • Thanks and yes I remember that too . Oncologist didn't seem to want to get into price  today when I asked about best treatments 

  • Thanks Jets.

    Keep trying and they will eventually listen to you. Stay positive