Rising PSA after Salvage Radiation

Hi All

I had a follow up meeting 3 months after radiation on my spine with my Oncologist today. He was visibly pleased with the drop in my PSA down to 0.25ng/dl. 

My Oncologist believes that my treatment has been successful and today I am well on the way to being cured.

Thank you all for your continued support.

Munster

Hello Munster 

That's brilliant news and time for a celebration. .

Long may your PSA remain low. It's been a long road to travel and I do hope you are at the end of the treatment path.

Thanks for your post - we love good news.

Kind Regards - Brian .

Hi All

I hope my journey (Stage4 - Secondary Oligometastatic Spinal Cancer) shows there is hope, the importance of keeping a positive mindset and never give up. 

All of the best.

Munster

Hi Munster - it most certainly does - “never give up!” Is one of my stock phrases! I have re-read this thread from the start and your interesting case should give a great deal of comfort to those who are battling a rising PSA after their first or second round (and type) of treatment.  AW

Hi Alpine Wanderer 

It is now been just over 3 months since my last treatment and I feel fantastic. I am not on any treatment plan at the moment and on no medication. I am back working a full week as a business advisor during the week and a DIY home renovator on the weekends. We decided to downscale at the start of this year and finally feel I am back to my old self, full of energy. 

In saying the above, I have positioned myself to have as little stress as possible. I listen to my body, pay attention to my diet, work on my fitness, sleep and mindset. We take short breaks as often as we can, enjoying what we have today. Who knows what tomorrow holds, I do not concern myself about that as it is out of my control. Today, I am in the best condition I will ever be, which I absolutely appreciate and cherish. If my condition however changes, I am good with that and will remain positive as a real cure is imminent for all of us.

You have been an inspiration, sharing how you tackle huge Alpine track. 

All of the best for the Festive season

Munster

That’s the spirit!  I’m writing this as I hike a coastal path on the Algarve!    AW

Hi All

I had my 3 monthly check up with my Radiology Oncologist on Thursday 27 February. My PSA has dropped from 0.27 ng/dl to 0.13 ng/dl. Looks like the SBRT treatment is working. My Oncologist said the centre of my tumours received 36 Gray over three days and the areas around the tumours receive 26 Gray.

I still feel healthy apart from my neck feeling as if I spent 30 hours flying economy without a neck pillow and I have slight intermittent pain in the Thoracic spine area. Apart from that I am very happy with the results. Whilst I am not on any trial the STOMP and ORIOLE Trail show that SBRT appears to have very good outcomes.

I expect my PSA to drop even further over the next 3 months when I see my Oncologist again, but if it doesn’t it is OK as there still so many tools available. Right now, my wife and I are enjoying life to its fullest.

All of the best.

Munster

Hello Munster 

What a great piece of news and fantastic to read - I am so pleased everything is going to plan and thank you very much for keeping us all in the loop.

Munster said:

Right now, my wife and I are enjoying life to its fullest.

That's just the phrase Mrs Millibob and I use - and yes we are off to Turkey a week on Tuesday.

Long may the low PSA remain.

Best wishes - Brian.

Thank you Brian,

I appreciate your note. I always try and keep up with everyone’s news and love hearing good news.

It saddens me reading the post of newly diagnosed men and remembering how lost my wife and I felt at the time. It is for that reason that I keep my profile updated as I know there was very little on Mixed DAC, Intraductal, Lymphovascular invasion etc. at the time I was diagnosed.

I remember when this all started and how lost I felt as there were very little available even through Dr Google that gave me hope. I have been fortunate in that my Oncologist, Macmillan together with my personal research and personal journey have made me understand this disease a little better (so much more to learn) and what to potentially expect, that there is a huge amount of medical tools available to still use and more coming daily and finally the power of my own mind.  

Thanks again to the Macmillan volunteers for your support. 

Kind Regards 

Munster