17 Months ago I had a Robotic Prostatectomy done. PSA after procedure was 0.06.Three months later it was 0.16. Due to my age and pathology report I was referred to an oncologist. Gleeson 8 Stage 3a.
Salvage radiation followed in September 2022 with 35 sessions on my prostate bed and lymph nodes combined with Luprin over 6 months. By March this year my PSA dropped to 0.009 and Testosterone below 1. Six months later and my PSA has increased to 0.086 and my Testosterone to 18.
My next blood test is in 3 months time.
Has anyone else walked down this road? What is the likelihood that my PSA will come down naturally? As I understand it PSA should not climb after all the work done without a prostate, indicating cancer somewhere.
Kind Regards
Munster
Hi All,
Thank you for all the kind words and support; it is much appreciated.
After 3 sessions on my C5 and 3 sessions on my T4 over 6 consecutive days, I feel 100% healthy. I was told that I might feel pain in my trachea seven to ten days after the treatments. It has now been 6 days, and I still have no side effects. My oncologist prescribed strong liquid opioids for pain relief after my last treatment, but I clearly did not need them. I intend to return the prescription to my oncologist when I see him next.
The next steps in my journey are:
I expect to be cancer-free. If not, that's OK. We will find it and treat it. The further I go down this path, the stronger I get.
Wishing you all good health and hoping the researchers find a cure for all of us.
Kind regards,
Munster
Hi Munster , that is a great update. Your positivity is a great example to others. I hope you don’t get any side effects now and can start to put all this behind you. Onward and upward! David
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
Hi Eddie,
Thank you for this brilliant post! We just need to hang on there with all the new treatments coming in.
Lots of love
Dafna
Morning Dafna, are you sure you meant me.
Eddie xx
Hi Eddie,
I was referring to the post you posted with the new research in Sheffield. All these new studies give so much hope. I probably reply to your post in the wrong place but it is still brilliant!
Lots of love
Dafna
Hi All,
After my PSA climbing to 1.1 before Radiation on my spine, I am pleased that it has dropped down to 0.91 in the 30 days after Radiation. It is a very good sign, hopefully my next PSA test at the end of November will be a lot lower.
I still find it hard to believe that I have cancer, let alone for 2 years and 10 months. Whilst my live has changed, it has not necessarily changed for the worse. It has slowed down tremendously, by design. I have become more patient, appreciative of what I have and for my wonderful family and friends, less selfish and a greater level of empathy for others. All in all, life is fantastic and everyday is a blessing.
Thank you all for the support
Munster
Hi Munster.
Good news that you have your benchmark PSA which shows a reduction and please let us know what it is in November. Posts like yours help inform others about the 'what next' after a prostatectomy then salvage radiotherapy.
In the meantime, carry on living life to the full. I think many of us can share your sentiments that having been given a cancer diagnosis in the family has actually helped us appreciate that life is precious, that we should make the most of it and in some ways it has made us better people.
Good Morning Munster
What good news. A very positive post and it's great that the Radiotherapy has done the trick.
I still find it hard to believe that I have cancer,
As for the last paragraph - I could have written that - that's just how I feel the only difference is I am 2 years 9 months into my journey.
Keep us posted as to how you progress.
Best wishes - Brian.

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