17 Months ago I had a Robotic Prostatectomy done. PSA after procedure was 0.06.Three months later it was 0.16. Due to my age and pathology report I was referred to an oncologist. Gleeson 8 Stage 3a.
Salvage radiation followed in September 2022 with 35 sessions on my prostate bed and lymph nodes combined with Luprin over 6 months. By March this year my PSA dropped to 0.009 and Testosterone below 1. Six months later and my PSA has increased to 0.086 and my Testosterone to 18.
My next blood test is in 3 months time.
Has anyone else walked down this road? What is the likelihood that my PSA will come down naturally? As I understand it PSA should not climb after all the work done without a prostate, indicating cancer somewhere.
Kind Regards
Munster
Hi Munster, sorry mate it's not the news anyone wanted to hear, just to pick up on bisphosphonates, If your not already taking them, you should, they will speed up recovery from the cancer and any treatment damage and provide pain relief as well, but they need time to start working. Surgery for mets to spine is rare, it's usually only done to repair serious damage. best wishes for tomorrow,
Eddie
Hi AH, I looked into having a PSMA-PET CT privately recently and was told £2,500, I too have no idea why it is this price
Hello David.
Please don't underestimate the value of your contribution to the forum. Your journey has been an inspiration to me and my OH in showing that we can beat the odds. It also informs that further treatments are available and the value of the medical team in keeping you monitored so keep posting and being proud.
What a lovely thing to say and one with which I fully concur. (Just back from 12 hours in the mountains, so having late dinner with Mrs AW - with wine of course - then collapse into bed!). Glacier day tomorrow, so up bright and early. AW
Hi All,
I had my first session on my C5 on Friday. In total, I spent about 30 minutes with my head clamped down in a mask. The radiation only took about 5 minutes. Despite being very uncomfortable for the 30 minutes, it was quite manageable. Over the weekend, I felt a slight tingle in my throat and noticed my voice dropped a note or two. My neck has been feeling a little stiff, and I have a weird dull pain in the T4 area. Two paracetamols later, and I'm good to go. I still feel perfect 99.9% of the time. Today, treatment starts on the T4 with a second mold being used.
It has been interesting to compare the MRI scans to the PSMA PET scans. After seeing both, I can understand the importance of using both. For example, the PET scan clearly picked up both tumors, whereas the C5 tumor on the MRI could have easily been missed. My oncologist had to point it out to the radiologist. The T4 tumor was very clear in the MRI scan of the vertebrae.
My recommendation would be not to compromise between an MRI/CT and a PSMA PET scan.
Life is great
Munster
Hope everything goes as well today on the T4 and more importantly that the treatment works for you.
Provided you have a PSA above 0.2 then I would push for the PSMA PET CT scan as it is a lot better at showing up mets.
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