Dad prostate cancer treatment change

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Hello everyone. 

my father was diagnosed with aggressive prostate cancer and his children (myself 40, and my brother 38) are his only family. He’s not telling us very much which is really affecting my mental health as I’m constantly worrying and thinking the worse. I know he’s only trying to protect us.

my question is, he was originally meant to be having chemotherapy and then radiotherapy but now they have said they will no longer be doing the radiotherapy. would there be a reason for this? My worry is that it has got worse but he won’t tell us. He is also really suffering with his heart and I’m worried about that also. 
I work at the hospital so know there is very little information I can obtain due to gdpr and patient confidentially but I really need to know this answer or what I can find out if my dad will not allow us to come with him to hospital or even tell us what is really going on. 

all I keep doing is crying, I’m now off work with stress and I really don’t know what to do or who to turn to.

sorry for my ramblings, hoping someone can help 

  • Hi MLM

    Sorry to hear  about your situation.  A few more details if u have them, PSA, Gleeson and prob the most important thing, has it spread or is it still within the gland.

    Just makes it easier to offer best advice

    regards

    Steve

  • Hi Steve. As mentioned in the post my dad is keeping all the information close to his chest so we are not getting much if any info….I asked for scores and he said….oh I don’t need to worry about thawhich again does worry me. I have got out of him that it’s rare, aggressive and that it may of spread but other then that I’m stumped. I’ve tried to tell him it’s hurting us more him doing this or not telling us but unfortunately it doesn’t seem to be making any difference 

  • Yes, not good, u being kept in the dark like this

    If possible, at some stage try and get the info.

    PSA, Gleeson, is tumour contained, 

    With that info we can help u with some advice and outlook

    Steve 

  • Hi Midlifemummy

    I know it's not easy when someone isn't too forthcoming with information but you want to help. It's possible that he feels embarrassed and that the illness is his and he wants you to get on with your own life.

    May I ask is your mother around or is he dealing with this by himself? If so then if he's not too keen on sharing with you would he like to join us or perhaps like to speak to someone who is in the same situation as himself.

    There is also support for you Carers only forum  where you may find some help or advice.

    If it's any help Prostate Cancer is a very treatable cancer and if it can't be cured it's treatable. If you can come bakt to us with any details of his full diagnosis we will be happy to help.

    Best wishes

    Brian.

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  • Hi,
     As an old man with ( many ) children. I can understand some of what your father is feeling. Sometimes you just need to be certain of your situation before sharing it, and if that situation is not good then it can be hard to put that burden on your children. 
    My advice is not to put too much pressure on your father, but be direct. Don't tell him your worries but instead tell him that you want to there for him on what will probably be a difficult journey. There is no need to be alone no matter how difficult it could be. You are his family and you want to care for him, just as he cared for you. 

    If you find it hard to get it across just print or copy this and give it to him. Hope he comes around and understands what good children he brought up.