Just Diagnosed PC

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Just recently diagnosed, awaiting consultation with a surgeon for treatment.  Am aged 60 with Gleason 3+4 = 7, PSA 7.45, Stage 2 - T1cN0M0.

Was shocked to get the news from the urologist, but now slowly coming to terms with this nasty thing.  After all it is what it is.  I have decided go for the surgery.

any suggestions from those people similar to my situation?  Much appreciated.

  • Hello Mike - Welcome to the club!!

    Any cancer diagnosis is a shock to the system - but at least with this one there are treatments available. With the statistics you have you are lucky it's not gone "walkabout" in your body and is confined to the prostate.

    I assume you have spent some time going through the pros and cons of surgery v HT and I wish you well with the surgery. There are plenty of people on here at various pre/post surgery who will be along to offer advice and if you have any specific questions please post them.

    Out of interest I wasn't offered the choice and went down the HT/RT route and like many people here my journey is available to read by clicking on the icon of the beach.

    I wish you well - stick around - it's a great place for help, advice and general chat.

    Kind Regards

    Brian.

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  • Hi Mike I,

    like you my diagnosis was a shock to the system, I am 63 and had PSA of 4.57, Gleason of (3+4) 7, PIRADS of 4 grade 2 cancer contained within the prostrate. 

    I am now 4 weeks post surgery and doing well although yet to get my final results of the surgery. I was given various options for treatment HR, RP and surgery, it was recommended by my consultant to have surgery due to my age and physical fitness and have it completely removed  and hopefully no further requirement for treatment. There are many for’s and against’s for any of the options which you will have read about and come to your own conclusions. 

    I cannot praise the MacMillan staff, consultants and nursing staff who have looked after me on journey so far. 

    all the best for the future. 

    Chris

  • Hi Mike,

    I was diagnosed earlier this year, no symptoms but rising PSA to 8.6, biopsy 3+4, 8 out of 19 samples cancerous. Fortunately contained. Age 54.

    Had surgery to remove 11 weeks ago. Now 98% continence (make sure you do the pelvic floor exercises). Now working on ED having just received the pills- think might take some time tho!

    Defo think I’ve made the right choice and has all gone better than expected. Biopsy was the worst bit of all!

    Best advice I got was “just put your head down and get on with it!”

    You’ll be much stronger than you thought you’d be.

    Best.

  • Thank you Brian.  Sorry to be confusing you but I am Mike I.  I think there is a serious technical problem with the website as it allowed me to log-on this forum initially, but suddenly shut me down and could not post or reply any more.  Did raise the flag to Macmillan Tech team, but still no joy.  So I tried to log-on in a different user and here I am.  Looks like Macmillan website has gone cancerous too?

    Any way, have secured an appointment with a surgeon on the 24th of August.  Will have many questions for him/her, then see how it goes.

  • Hi Chris, thanks for sharing your state.  I am sure you will be on a speedy recovery route.  I am yet to go through this initial stage which you already have passed.  By the way I am Mike I.  Had to log in with a different name as I was not able to post or reply with my original log-in details.

  • Thanks Tempest.  Good to hear that your continence is 98% which is as good as a normal man.  Yes I am doing the pelvic floor exercises as advised by the nurses.  This should hopefully help recover fast after the surgery (?).

    Regatds

  • Ah - Now that makes sort of sense!  I take my hat off to you surgery types, as I said I didn't fancy it but the didn't give me the choice anyway.

    Having the indwelling catheter for 10 months once it was removed after the TURP operation I was told to do the pelvic floor exercises 3 times a day. I went from being every half hour to every 3 hours quite quickly and I put it down to doing the exercises although you need to ensure you are doing them correctly.

    I was stood in the kitchen doing a set of slow/quick exercises when Mrs Millibob walked in - I hadn't told her I was doing the exercises and she took one look at me and uttered those immortal words - "just what the hell are you doing in my kitchen - there's washing up to do"

    You take care and keep us posted.

    Best Wishes

    Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi Tempst,

    That’s great news well done. I have to admit I try to do my pelvic exercises 3x a day too. I find it easy to do them while sitting and lying down and everything moves as it should do according to the instructions. My problem is doing them while standing nothing seems to move as it should Cry

    I have very little leakage problems while witty or lying down, but as soon as i am up and walking about that’s when I have leakage which is very frustrating for me but I suppose I’m not the only one. 

    Hopefully things will start to improve for me. 

    Thanks for sharing on this.

    C