After a long time of frequent nightly visits to the toilet I finally made a doctors appointment in March to get this investigated. PSA score came back at 7.6, & after an MRI scan & biopsies prostate cancer was confirmed with a Gleason score of 4 + 3 = 7.
To my great relief, a bone scan confirmed the cancer hadn't spread outside the prostate, & after the Oncology appointment in early June, have been on Hormone therapy - daily Bicalutamide tablets & 3 monthly Decapeptyl injections.
I have opted for SABR radiotherapy which will involve a higher radiotherapy dose per session but mean far fewer sessions, namely 5 over a 2 week period. The planning session is booked for the beginning of August with the radiotherapy provisionally scheduled to start mid September.
Has anyone in the group had experience of SABR & any hints & tips they can share?
I must also add that I can't fault the professionalism of all the NHS staff I have come into contact with concerning this. They have all been extremely helpful, understanding, but most of all friendly which has made the whole journey much easier to deal with.
Hi
I have read about SABR and it was recently reported that NHS is starting this higher dose rate spread over fewer days.
I don't think it was available on NHS before but possibly available privately.
Anyway it looks good and great that it's spread over on 5 days rather than the usual 20
Good luck
Steve
Thanks, I was told that I had a lesion on my mri. I had a target biopsy done on the lesion, 5 cores taken all cores had 3+4 cancer. I have refused standard radiation and hormone therapy, and surgery because of side effects. I was told that I might have an option for sabr radiation on a clinical trial. I am considering having it done, not sure, I am 62 years old and not happy about the side effects of radiation.
Thanks for your reply
Hi Swiper
I am with Grundo here, I am 6 months post Radiation, with another 18 months on HT. Age 67. Yes there are side effects and I am a higher Gleason Score than you. The initial side effects of the RT went within a couple of weeks - the side effects of the HT are there but easy enough to cope with.
For me the HT/RT was/is with a view to being "curative". A small price to pay I think.
You can read my journey by clicking on the icon of the beach or if as Grundo says you have any questions ask away.
Kind Regards
Brian.
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Hi Steve,
I must admit that the option of having fewer radiotherapy sessions was a major factor in choosing SABR. The 5 sessions will be spread out over 2 weeks - as an example Week 1, Mon, Wed, Fri, then Week 2 Mon , Wednesday.
Hopefully the traveling to & from hospital will be less tiring than having to go 5 days on the trot for 4 weeks. Time will tell
Hi Swiper,
My original post was my first one so I know what it feels like being new here.
Before my Oncology appointment I made sure that I had researched as much as I could about possible treatment options, & had also discussed these with my partner & used them as a sounding board. This meant I had already got an idea as to which route I would prefer to go down.
Ahead of the meeting I had made a long list of questions that I wanted to ask & had written these down in a notebook that I took with me. Most of them were covered naturally in the discussions with the doctor & uro-oncology specialist nurse who were both extremely friendly & understanding.
My best advice at the moment is if you are still unsure which treatment to have is to raise any questions / concerns you may have so that you feel comfortable with your choice.
I will keep this post updated with how things progress.
All the best
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