Post surgery

Hi C

It's about the right time to get a PSA now.

Hopefully will be near zero.

I would go to your GP and ask for one, should be no problem.

Good luck

Steve 

Hi Steve, 

I have had the blood test and was told to have it a week before the appointment. Was going to be told the result of that and about what they found when cut up prostate but now have to wait for another appointment, which hopefully won't be too long. 

Colin.

Ok I understand,  hopefully not too long now.

Steve 

Have you tried signing up to the NHS app? Once you have signed up you can normally see test results. I have the same through my Dr's surgery as well and can see blood results when they are completed. Worth trying. Good Luck.

Hi Collywobbles.

My husband had his surgery on 15th April this year and he had his follow up appointment booked for 13th June, which was 8.5 weeks later. His appointment was scheduled to be by phone call and when it came through, we were told that the results weren't back yet due to staff shortages and a backlog since Covid!! We were then told we would hear again in about another month to 6 weeks!! We emailed to complain after the phone call and were immediately given another phone appointment for 11th July. Having researched online ourselves, we booked a PSA blood test at the GP surgery a week prior to this appt. Thankfully when the call with his consultant finally came through, we were told his PSA result was zero and that we just needed to book another one in 3 months time. 

I know how frustrating and anxiety inducing all the waiting is and we have both been on tenterhooks for months now - but don't give up. when we have hit delays, writing an email to the consultant has resulted in action far faster than a phone call. I imagine it is because once it is in writing, it is on file for all to see?

Good luck with your results and hang on in there

Hi Woolly,

I'm glad your husbands PSA level is zero. I emailed the care coordinator asking her to try and get me rebooked but never got any reply, so I rang her the next day. She just said it was out of her hands because  of the strikes and that the booking office would ring me in that afternoon or the next day with another date. Did not get any phone call, so I rang the booking office and they told me sorry but really busy and I would definitely hear something by Monday. Again heard nothing, so will have to chase them up again tomorrow. Its been over 11 weeks now since operation and waiting to see if all clear and to discuss issues that I am having. 

I'm so sorry to hear you're having such a run around - we had much the same not only with getting the results, but also getting a surgery date in the first place. I do understand how frustrating and upsetting it is. As I mentioned before - we always got much swifter results when we chased by email rather than telephone, as I assume it is then on record and can't be ignored as easily? Its definitely worth a try? 

Wishing you good luck for your results and that you don't have to wait too much longer for them 

My husband had surgery on 27th June and his discharge report says to book it 8 weeks post op. The urology nurse who removed his catheter told him to arrange it for 7 weeks post surgery so we took her advice and he's having this done on 16th August. His discharge report also says Multidisciplinary Meeting with histology and PSA Nadir in 6 weeks, followed by and out patient appointment with the consultant after Multidisciplinary Team, so it looks like this could be 13/14 weeks after surgery.

I agree this is extremely frustrating and stressful, but maybe this is the norm.

Out of interest what were your figures on diagnosis?

My husband was Grade 2. Gleason score 7 (3+4) , T3 N0 M0 Locally advanced. He was told that it was treatable and curable and told that he would be given the option of surgery or hormone therapy and radiotherapy and he would be able to make his decision at the next appointment within 2 weeks. When he went for the appointment, they insisted on him having a bone scan and a CT scan before he could decide, so another few stressful weeks waiting. When he decided on surgery he was told that it would be July before he could be listed, but he got a phone call a few days later offering him the June appointment, so we are further ahead than we thought we would be.

I hope your aren't waiting much longer and that the results are what we all hope for.