My husband was diagnosed with PC 9/1/23 after raised PSA, MRI and biopsy all discovered at the end of last year. His grading is 3+4=7 and cancer was found in 23 of the 24 biopsies taken. We have had 2 meetings with specialists - the first one where the news was broken to us and we were given the treatment options, the 2nd one to discuss our decision to go for surgery and what to expect. At this last appointment on 7/2/23 we were told surgery would be anytime between 2-5 weeks time. It was also explained that whilst there had been no sign of spread on the MRI or bone scans and that it was relatively low grade, there was a lot of it (as indicated by the 23/24 samples testing positive). He told us that there was a possibility of needing radiation after the surgery due to this. This understandably worried both of us, as we had put all our faith in the radical proctectomy providing a complete cure up until this point. He did however indicate that he was still hopeful to be aiming for a cure.
We are now still waiting for a date for surgery, despite having chased the hospital twice for updates. It was his comment re there being a lot of the cancer that has worried us so much and we can't help being concerned that the wait is increasing the risk that it will have spread outside of the prostate the longer we leave it in there.
Does anyone else have experience of this situation and how long is it usual to wait for surgery in these circumstances. Also I would be interested to hear any experiences of needing radiation after surgery - ie: is this common?
Thank you in advance for any replies
