It's not looking good is it?

Hi Q.

Sorry to hear about OH, may not be as bad as you fear though.

PSA is a bit high but not alarmingly. One of the main things is what the MRI shows, hopefully any cancer contained within the gland which does make it more easily treatable.

Biopsy will give a Gleeson score between 6 and 10 , the lower the better but even if at the high end if cancer contained then does make it easier, so fingers crossed, let us know.

Best wishes

Steve 

Hi, sorry you are on this journey. My husbands PSA was 102 originally with metastises in the bones. Started hormone injections in Jan, blood test 2 weeks ago PSA 38.5, testosterone level proving stubborn to lower so started on Bicalutamide also oncology appt & 2nd Prostap injection on 14th. March.Trying to stay positive. Husband feels well. Hang in there my lovely 

Hi Quitit23, this is a worrying time for you and your husband. As Grundo says, it may not be as bad as you fear and I hope that is the case for you. Also, can you hang on to the fact that prostate cancer is usually slow growing and, even if it can't be cured, it can usually be managed for a long time. Over the years, there have been many new developments - robotic surgery, newer drugs, new ways of scanning, a new and more accurate way to do biopsies etc etc. My understanding is that research is ongoing but- for me, personally - it is not quick enough

The important thing to note that if your husband has confirmed prostate cancer you should let all his close male family members know so that they are aware that they are at higher risk of getting it and so should have their PSA's checked regularly from the age of 40 (or it may be 45). Also, if there are other incidences of prostate cancer or breast cancer in the family you might consider genetic screening?

Best wishes and good luck

Hi Everyone

It's just such a difficult time for us.  He's so young, and already has a degenerative condition that's changed our life.  One which is very rarely diagnosed at 35 but very normal at 75, that means were already 15 years into life changing situations. So this now adds the whole new element of dealing with things way before our time.

I am deeply concerned, though not so much about the big C, more about the long term effects of any treatments and long term monitoring etc. Because the idea of any reduction to intimacy petrifies me, and I don't want (or need) us to become simply housemates.  It sounds so basic, but it's important to maintain relationships which are already long standing and i am not ever 50 yet myself.

This then clearly is a condition that has massive impacts on not just the patient but their intimate partners.  We have been married nearly 30 years so it's not a new relationship.

In my heart I know its best caught early, and prognosis is better than others.  It my heart I know it is cancer even before the biopsy results.  I just think that if 1 out of 2 are going to get it, I wish it was me, for so many reasons.

It's just so much to deal with at what feels like too early in the book of normal life journeys.

Hi

The MRI showed suspicious areas but contained in the prostate which I take much comfort from.

He did go to his GP quickly and I feel its not been growing merrily for years.  

Biopsy this week, so I am preparing for the long wait for results which is going to be testing I am sure. 

Unfortunately I am a very analytical person, this can be a burden, as sometimes I think not knowing potential ramifications of situations could be really useful when dealing with it. 

Hi

From wife's pov, how are you finding the treatment and the process really?

I feel guilt worrying about the ramifications, I also feel guilt for needing to talk, but hubby has every right to ask me to respect his privacy and not tell our adult kids or family. 

If I had breast cancer instead, there is not the same embarrassment attached is there?

I am also a very analytical person and some times that does help when trying to work out treatment options etc.

You say that you're worried about the intimacy side of things, very understandable. Do look at potential side effects for both surgery and Radiotherapy.  Arguably u could be better off with RT to save potential ED issues but would suggest that u do much online research. Please come back here with any queries 

Steve

I said to a friend last week I wish I could live in my husbands head just for 24hrs as he seems to have accepted it so much better. Denial? I'm not sure. He has never been a talker so it's hard. My mind keeps jumping to the possible end result & then I feel guilty for writing him off. It is definitely a mental roller coaster. Some days are easier than others. I wish I knew the answer x

Thank you.

Honestly I am sobbing, because you said my worries are understandable and that's so nice. 

I felt like my concerns were selfish. 

when PC  is first diagnosed your mind does tend to go all over the place but it does get better, when treatment plan in place your mind will  improve.  and u can always come on here for help

Steve