Feelings / coping

  • 10 replies
  • 149 subscribers
  • 712 views

Hi - this is my first time posting. My beloved partner was diagnosed with Advanced Stage Four Prostate Cancer last March. It’s very rare for it to be diagnosed at the stage it was. He has multiple bone metastases in his spine, rib cage, thoracic cavity and his right shoulder blade as well as in his pelvis and lymph nodes. So far the Zoladex injection is preventing it from spreading further, but we have been told his care is Palliative, he can’t be cured and is likely to be life limiting. My post isn’t about treatment. I will try to explain as best as I can. My partner is always positive and emphasis is on keeping him being him as long as possible and not giving in to it. I myself am trying to be positive too to support him. But just recently I am finding myself getting overwhelmed, feeling low as I want him to be with me forever, but I know it can’t be. I have found myself getting frustrated with him which isn’t like me usually- especially as he doesn’t take in what the oncologist tells him and I need to reexplain things. And he sometimes forgets to take important medication for a week at a time. We don’t live together so I can’t always be there to remind him. I’m usually very patient as I love him so much and would move heaven and earth to cure him if I could. Until last weekend I hadn’t cried about it in front of him. But last weekend the flood gates opened and we both cried together. But now I feel guilty and selfish as I’m not the one who has cancer. He is. Is it normal for partners to feel like this? Is it ok to share my feelings with my partner? On the plus side, we have lots of things planned to look forward to and we have the approach that it lives with us and not the other way around. I’m being told by friends and colleagues that I need to take time for myself too. But I love him so much, that I find that hard to do as I’m quite fixated on thinking about nice things to do that he will like.  

  • Hi, I am so sorry to read what your partner and yourself are going through.  I would say that holding your emotions in isn't going to be beneficial to you, we are only human after all.  

    Planning nice things is a good way to focus on things to look forward to so I would continue with that.

    In terms of him forgetting his meds maybe have a chat and explain that it is adding to your stress and worry?

    I think the patient not taking in what the oncologist is saying is quite normal, it must be a lot to take in.  Maybe ask the oncologist if you could record the next appointment on your phone? I'm not sure if they would agree to it but it may be worth asking.

    Sending lots of love 

  • Hello Julie,

    Prostate cancer is a couple's disease - it has a profound impact on both of you, but the issues are different. There's a relatively new support group for partners of prostate cancer men (but not the patient themselves), and maybe you might find this useful? It's a national group which meets quarterly on Zoom, next meeting Mon 30 Jan.
    https://tackleprostate.org/support-groups/national-prostate-cancer-partners-support-group/

  •    If there is a Maggie's Centre near you, give them a call or drop in. They are there to support both cancer patients and their partners. Otherwise you could call the nurses either on this site or the Prostate Cancer UK site, both are very helpful.

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • Hi Julie.

    My husband of 53 years has T3M0N0 prostate cancer. At 81 and having had much intervention over the past 3 years for a) serious RTA and extended recovery and b) tonsil cancer now in remission, he had decided against radiotherapy and instead opted for 6 monthly PSAs and if it goes up a lot, hormone treatment.  It's hard to accept he doesn't want treatment but I do fully support his decision.  He has no symptoms and yes, we are living WITH IT and travelling and doing things with the family and f8tting in all we can.  All good wishes to you 

  • Thank you. I have explained to him already how upset I feel when he forgets to take or order his medication. He has a pill box now and has agreed to note in his diary when it next needs to be ordered.

    I have asked the oncologist to explain things to him more clearly. We have face to face appointments as my partner finds this better. I attend his appointments with him so that I can listen and take down the information. Then I can explain it to him and remind him at a later stage if necessary.

    We have lots of good things planned. We’ve agreed to not talk too much about the cancer when doing things that we have planned as nice things.

  • Thank you. I think this will really help me. 

  • Thank you and good wishes to you too. Can I ask which company you use for travel insurance. My partner is 60 in March and we are planning a trip to Venice for June. 

  • We used Paying Too Much. It was £600 for a year  but he does have a lot of problems.  Worth a try

  • Hello Cat Crazy. I’ve been trying to reply to you since you posted your message. I am so sorry to hear of your partners diagnosis and your distress.  Getting the diagnosis turns our lives upside down! It’s a horrible time. We have been on this journey since last September. I am having a really bad week with tears never far away.  So, I can’t think of the right words to say other than I know how much we partners / wives/ daughters experience this . You are not alone and some of the bravest and kindest people will support you!  It sounds as if you have some lovely plans - I hope you make happy memories! X