Treatment Ended, Concerned

Hi Spuduknow

i’m afraid I can’t comment on your physical symptoms as I really don’t know enough about prostate cancer after the treatment you have already had and the symptoms you are experiencing. However your general feeling of being unwell and your really worries about this are very loud and clear. I just wanted to let you know I’ve read your post, acknowledged your problems and really really hope that all turns out well for you and that you soon begin to feel a bit better.

look after yourself and I wish you, too, a good Christmas

Worriedwife 

Firstly thank you so much for your very kind words.

I am grateful for your response.

It's so nice to know that someone is listening.

"Thank You"

Good Morning Spud

So sorry to hear of your issues, it looks like you are being hit by almost everything possible all at once. i can't comment on much there apart from the loss of appetite - that's what go me into hospital in the first please (see my profile) and I hope that's not the issue.(Get your GP to check your GFR count).

You are doing the right thing by keeping busy and taking exercise, but I would be onto my GP, Consultant, Oncologist, Dedicated Nurse like a rash with all the symptoms and asking for answers.

Your comments regarding radiotherapy and the effects made me laugh as I have my planning meeting tomorrow. I hope I don't cop for all the side effects!!

Stay positive, put it all to the back of your mind, have a good Christmas and New Year and let's hope that your issues are sorted out in the near future.

Best Wishes and I hope all goes well.

Kind Regards - Brian.

Like Worried wife I just want to let you know that I've also read your post and empathise with you. I think the advice Millibob has offered is great and you must run it by your nurse/ GP, it's also a difficult time of year as its cold and dark early and that doesn't help much with feeling low on top of everything else. The exercise you are having with the dog walking is a positive thing as that will keep you lovely and fit, take some extra calcium, vitamin D and C  (2000g vitamin c) as it will boost your immune system as well as perking you up a bit. I hope you have a lovely Christmas and New year. 

L

Hi Brian,

Thank you for your concern.

I have just had my GP on the phone (yep on a Sunday)

He said that the blood test I had about ten days ago have shown that I am anemic and he needs to know why.

So I have to book more blood tests tomorrow with the surgery.

For some reason they were told not to take my PSA when I had them done ,!!

At least things are in the move and I may get some answers.

I hope everything is good at your planning meeting.

I'm sure it will be 

Take care and have as lovely a Christmas as you can

Barry W 

Thank you for your words, it's so nice to know people's view.

I have just replied to Brian regards to my GP calling me today SUNDAY.

He is saying that recent bloods have shown that I am anemic and he needs to know why.

So more bloods to be booked tomorrow when the surgery is open.

Wishing you a wonderful Christmas

Kind regards

Spud

Ahh thats why you are feeling very rundown, well done for sorting it out while the surgery is still open.  Let us know how you get on with the bloods. Definitely get the high dose of vitamin C because if the Gp gives you Iron tablets it absorbs into your body much better if taken with Vitamin C.

Hope it goes well for you.

L

Barry W 

I will let you know when the restsults come in.

I couldn't believe it as he was working from home and had checked my results

Thanks again 

Kind regards

Spud

I was slightly anemic after radiotherapy - I didn't have chemotherapy just 9 months of hormone Therapy and a month of Radiotherapy after being on Hormone Therapy for 6 months. I was given 6 months of iron tablets from the GP but had to stop iron tablets after a month  for some other test or scan - can't remember what, and the hospital tested my iron levels at that time and they were already back to normal.  It depends how anemic you are as to how long it will take your iron levels in the blood to get back to normal.  The thing with iron is that if you normally have high levels then a small drop can make you feel bad even though in a blood test it would not show as very low,   Hope you are on the way to getting things sorted.

Hi,

What you describe is 'normal'. My advice is to get another PSA. If it is still at 0.1 that is a good indication that if the cancer has spread it is not spreading rapidly. I would also ask about a bone scan to put your fears at rest. Speak to your oncologist about the bone pain: it may be just be the result of prolonged HT, which will also cause profound tiredness, as you know. It could also be a result of RT and might diminish over time.

Nobody knows how long after HT ends a cancer may return, if at all. There are men for whom it never returns and others for whom it returns rapidly. Keep in the loop with your oncologist and your GP. They have a tendency to think that's it when primary treatment has finished and sometimes need waking up.

Best of luck with it and I wish you well.

JJ