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I am 59 was tested for  and confirmed to have low testosterone. Before being prescribed testosterone I had a PSA test which came back at 18.4.I was then sent for an MRI and an abnormality was found and rated as PIRADS 5.I am waiting  for a CT scan and Bone scan. The abnormality is on the left side only of my prostate. I have had and been treated for urinary tract infections several times over the last 5 years and as of today (03/12/2021) I am taking a 7 day course of antibiotics (Nitrofurantoin 100mg caps.twice daily).I am concerned I may have prostate cancer but not overly so , thus far. I have done extensive research and am aware of the many treatment options for the various types and grades of prostate cancer and realised PC is not an immediate death sentence moreover it appears that treatments are advancing and improving . Until a conclusive diagnosis is reached I have not considered which treatment/s I would prefer bar one that is the HT.I am a regular gym goer and the thought of the effects of having my testosterone levels lowered more than they already are is highly unappealing to me. I had  an appointment with the consultant recently , to discuss the MRI results. During the consultation he performed a DRE and since the DRE I now have a burning pain that has been present for 3 days. During the consultation with the consultant prostatitis was mentioned very briefly and I paid little attention to its mentioning. Since the appointment I have researched prostatitis and am wondering if the DRE has aggravated my possible prostatitis in some way. It is more than possible, based on the results of the tests  conducted so far, that I  have PC.

My problem with the events so far is that my mental health diagnosis and the several medications I have to take for life has not been discussed or considered. I have bipolar and PTSD. The PTSD relates to childhood abuse  mental, physical and sexual(I was raped at the age of 5.All of the latter are recorded on my medical files.As you can imagine a DRE is an extremely traumatic thing for me and the pending transperineal biopsy is already causing my PTSD symptoms to escalate. Posting the above anonymously on a forum is not too much of an issue but discussing with the consultant is.Is there any advice others could give about how I should bring the matters relating to my PTSD to the attention of the consultant and others dealing with my medical care. The thought of multiple people in one place knowing is quite distressing to me .

  • Hi Andy

    So sorry to hear of your history.

    Bad enough to suspect PC but, with the other things that have happened to you, I can't imagine how you must feel.

    If your PTSD is on your notes, I would imagine the consultant and team, will already be aware. Perhaps you could just ask them if they are fully familiar with your history. Can't see how PTSD can impact PC ( happy to be proved wrong) so I feel the consultant is unlikely to delve too far.

    For the biopsy, you won't have to tell anyone anything - just that you are very nervous about the procedure. I believe that the biopsy can be taken under general anesthetic, which may help you. 

    The nurses on here are really good, and you could talk to them via the chat facility to preserve your identity.  You can call them too, if you like. They may have some suggestions.

    Not sure if my thoughts help,but I sincerely hope they do.

    Stuart

    Trying to get fit again!
  • Hi Andy

    just a thought, could you copy and paste what you have written here about your mental health and traumatic childhood? You could then print it out and hand it to the consultant at the start of your appointment?

    best wishes and good luck!

  • Thank you that's a great idea,I will do that.Thanks for that !!

  • Thank you for your wisdom. It's a great benefit to me 

  • I wondered the same @ PTSD and it's effects on prostate cancer. There are some studies concluding there is an effect. I'm not sure if links are permitted on here so I will do it like this .There was a study "Risk factors for incident prostate cancer in a cohort of world trade centre responders" by the National Library of Medicine .

  •    Yes, you can post links here. I think this is the report you are referring to:

    pubmed.ncbi.nlm.nih.gov/.../

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • Hi Andy

    Very interesting report - looks like I was wrong.

    Stuart

    Trying to get fit again!
  • TBH I assumed the same as you but as someone that has PTSD and bipolar ,I did a google search.Several studies concluding similar outcomes came up but that one seem the most credible and validated the other studies.Perhaps I can add a different perspective and help others with similar mental health diagnosis. 

  • I received a letter from the consultant after my consultation .Most of what was contained within the letter , I cannot remember. Not because the consultant didn't give the information during the consultation but because of the way my state of mind is during such consultations and hospital visits .I contacted my mental health team and they explained normally I would be given an advocate to assist me, however the waiting list for such a service is long. I came across an organisation called VoiceAbility, their website is :https://www.voiceability.org/   it may help others with SMI (severe mental illnesses).They have been very helpful and prompt in their replies .

  • Diagnoisis:                    Two-week wait referral for a raised PSA reading of 18.4.

     

    I .

    Past Medical

    History:                         Post traumatic stress disorder. Erectile dysfunction (ED). Bi-polar disorder. IBS.

     

    I reviewed this fifty-nine-year-old gentleman this morning in a face to face clinic appointment in the presence of XXXXX our Urology CNS. XXXXXX  has been referred to urology via the two-week wait suspected prostate cancer pathway and triaged direct to MRI scan of the prostate gland.

     

    Review of the MRI images in our urology multi-disciplinary team meeting (MDT) on the 22nd November confirmed a PIRADS 5 lesion in the right peripheral zone with possible capsular breach and involvement of the right neurovascular bundle. There was also evidence of multiple pelvic side-wall nodes and a left gro'in node, making this clinically T3a,N1, if the diagnosis of prostate cancer is confirmed on biopsies.

    The MDT advice was to offer LATP prostate biopsies and a CT scan of the chest, abdomen & pelvis and a bone scan to complete staging.

     

    XXXXXX reports recurrent UTls, but no bone pain. His fluid intake is generally good with good hydration and no caffeinated drinks.

     

    On clinical examination (CNS present) DRE revealed a hard feeling right lobe of the prostate gland, clinically T3.

    I have explained the above to XXXXX and booked a CT scan of the chest, abdomen & pelvis and a bone scan to complete his staging investigations. LATP biopsies have been booked and XXXXX  has been given the BAUS information booklet about the procedure. He has also been given a blood test request form for pre-CT U & E and a blood test request form for a PSA check (to be done no soon·er than ten days from today). We will update both you and the patient following review of the histology from

    -the biopsies at MDTr -