Cribriform

Bosuer, welcome to the Prostate forum.

I've just been trying to read up on Cribriform, it looks complicated.  I've never heard of it before.  Hope your news is good.

You never know, there may be someone else in the forum who has had the same thing as you.  They're a great bunch here, always willing to help.  Most of the advice is from personal experiences.

There are a lot of very knowledgeable men (and women) here.

Best of luck 

Thanks Steve, I hadn't heard of it before yesterday either. Apparently there are four main types of Prostate Cancer and Cribriform is just one of them, the more aggressive type. So, I'm still waiting for the PSA blood test result and hoping it is very low and indicating that the cancer has not spread yet. As an aside I had the blood test done a week ago and nobody seems to have it - Lost?

Kevin

I don't suppose you have the "Airmid" app, got it through my doctor.  When I had my last PSA levels done I had access to the results the morning after.

There are a couple of apps so you can access your medical records.

Hi Steve,

It seems that health authorities have different systems. West Suffolk Hospital (WSH) have the patient portal and Addenbrookes use 'MyChart'.

I've checked both and no result. Having managed to speak to various people today it seems that my sample is missing presumed lost - nobody has it. But the excellent urology nurses at WSH arranged a quick blood test and result within the hour - unbelievable, my PSA count is now <0.01 - in light of my consultant's report I was not expecting that.

I'm now hoping the next 4 tests are equally as good.

Kevin

Wow! Results within an hour.  It shows that it can be done.  Glad to see your PSA levels are 0.01

Hope your next tests are the same.

My father used to live in Cambridge, he had a few different Cancers, beat them all, he succumbed to Dimentia.

Anyway, Addenbrookes did a lot of research, that was when I found out that Cancer was rife on his side of the family.  Bowel Cancer the main one.  I've been getting the camera up every 3 years, usually comes back clear (apart from the you know what), but last month they had to remove a Polyp.  They said they were going to do tests on it, but I haven't heard back.

It was 27th May last year when I was diagnosed with Prostate Cancer (Gleason 3+4(7), Intermediate Risk).  This was at the Freeman Hospital in Newcastle.

I had been on Active Surveillance for about 4 years.  The good thing is that everything happened so quickly, appointments, scans biopsies, put on Hormones, then 20 fractions of VMAT Radiation in October.

To cut a long story a bit longer, I was told that I was in Biochemical Remission on 15th February (PSA 0.09) and as long as my PSA levels can stay under 2, I don't require any further treatment.  

Another 6 months or so of Hot Flushes while the Hormones are coming out of my system.

Last month my PSA rose to 0.03, once my Testosterone machine starts up again, my Oncologist said that the PSA levels will probably rise.

If that bridge appears I will cross it then, in a better position than I was last year.

I had counselling after my Radiation treatment.  This worked amazingly.

The one thing I can't stop doing now is waffling on and on and on and on...

Hope I haven't bored you.

Hi Kevin. Your PSA result of <0.01 is great news. This should be quite a relief for you.

Cribriform pattern is a significant predictor of recurrence, especially with non-organ confined disease, so you will need to be watched closely in your follow-up.

I am not clear on your pathogy. Was it PT2 or was it described as a positive margin? If the margin is positive, I would suggest a few monthly PSA tests. This will give your team an earlier heads up if the PSA begins to rise. If you are PT2, the 3 month test schedule is good.

Hi Steve, my sister-in-law also has hereditary cancer cells. She too has a camera, but every 6 months to a year with many polyps being taken out.

I like the idea of Biochemical Remission, you must be pleased with that.

Let's hope your PSA levels stay below 2, that will be amazing !!!

Hi Stampede, yes the cribriform is still worrying because as far as I know it escaped the prostate capsule and ended up in no man's land. They may have got it out when they cut away a margin around the prostate but only time will tell.

I've yet to receive the report to read in details so I'm not sure if they have classified it as PT2, but from what the consultant told me I doubt it. I didn't know about PT2 or pathology gradings when he telephoned so didn't know to ask. 

The only thing I can do now is remain positive and hope that my 3 month PSA is good.

Kevin

The Remission was harder to take than the original diagnosis last year.

The whole experience has made me a better person, more understanding and empathetic.

If it does ever come back I will be ready!!!

Fingers crossed for you Steve