Cribriform

Good evening 5/2/22 I was diagnosed PSA 4.85 with Cribriform T4+3=7 was messed around by NHS. June PSA now 6.6 so went to Vitus Offenbach Frankfurt 24/6 where successful 1.5hr operation has PSA 0.03, now with Care Oncology Harley St, low cost, great advice when needed. NHS still not appointed me a consultant 6 months on. QCC inspectorate toothless So give Care Oncology a look as very efficient as we’re Germans who provided all information free in advance.. 3 months clear PSA 0.03 still read 4 books which have helped immensely. Cribriform is testosterone based and my fitness and eating routine created testosterone.

Hi Dale, I'm pleased your PSA levels came back at 0.03, i hope that continues for you. I think I'm in a similar position. Following Robotic surgery I'm T3 3+4=7 with 30% pattern 4 Cribriform. It left the prostate and reached the outer edge of the margins and because of Cribriform's aggressiveness may have already spread further. My post surgery PSA count is 0.01 and I'm to be tested every 3 months. All I can do now is wait and hope the PSA does not rise.

Hi Bouser 

I have read the Power of Now, Eat to beat disease, how to starve cancer and Longevity Diet books which helped me understand what can help me

Care Oncology doctor along with urology doctor are very happy with my bloods and approach which to date are giving positive results. I have my 3rd 3D MRI scan Jan 2023 so hopefully the Mediterranean food aligned with Asian will continue in my favour 

Never give in, as my lifestyle despite being healthy was increasing my testosterone which feeds cribriform so I have changed my diet and now revising my exercise routines

best advice is when changing anything you do is get in the habit of recording so doctors have facts to work from

best wishes Dale 

Thanks Dale, I've just downloaded the book to my Kindle and will read. Apparently red wine is on the approved list so I'm just about to pour a glass . 

I'm certainly not about to give in and remain very positive. Good luck with your MRI scan in Jan.

Kevin

Hi Steve, my husband has cribriform too. Rad prostatectomy Dec 2023, recovered fantastically, but gutted at post op pathology results Feb 24 upgraded gleason from 6 to 4+3 aggressive cribriform, with extensive extracapiscular extension. His prostate lesion of 15mm pre op was now 34mm.  His PSA was 1.9.  He had every scan available multiple times as his PSA continued rising fastly, but they couldn't locate the metastasis until Sept when it was found in his 10th rib on the back.   He then had SABR radiotherapy and was put on a 3 month  hormone injection which caused him many health issues (he was previously healthy).  He was very ill on the hormone, though his PSA and testosterone went to 0.  It took him until March 2025 to recover from the hormones and his heart/kidney issues have all returned to normal. However, his PSA has been on the rise again and was 4.4 in June, its now 11.5, so we are on the scans again now to locate the cancer.  Oncologist expects it to be in more than 1 location this time. Has anyone else had similar?  Oncologist will try the newer daily hormone tablets next time and hope he doesn't have the same side effects. Good luck everyone on your journeys. 

Sorry to hear my PSA climbed from 0.02 to 0,53. NHS urology Peterborough NHS performed MRI, contrast MRI both returned negative. I employ Hari Khulna Lucio & he requested further abdominal scans & I requested they contact UCL urology and a nuclear scan was arranged with Northampton NHS. Results again negative BUT luckily UCL had requested do reviewed and I have abnormalities on left side so attend UCL 1/9 for another contrast MRI and immediately a biopsy from the area identified. Those who are paid to check MRI scans have put me and any number of others at risk. Always seek a second opinion . I have already requested HiFu treatment in readiness and appreciate the information related to prostatectomy and related information 

Best Wishes Dale