Hi all, second post from me but this time my husband is keen to hear from others in a similar situation.
briefly, he was diagnosed at the end of May with stage 4, Gleason 9, spread to pelvic wall and multiple lymph nodes. the oncologist said prognosis 18-24 months but if treatment works then maybe 4 years. My husband is finding this prognosis so difficult to comes to terms with. I have tried to reassure him that this may not be the case as I have read on here of lots in a similar situation that have surpassed this time.
We are still in complete shock and my husband still feels really angry as he had been back and forth to see the GP for a couple of years with, what we know now, many symptoms of prostate cancer and maybe if he hears about guys in a similar situation then it may help.
thank you all x
Hi Barry W age has nothing to do with prostate cancer any man can get it, but it's only 50s can demand a PSA check.
Until all the scans and biopsy are done, it's impossible to say much, don't just read anything on doc Google go to proper sites prostate cancer UK, Macmillan ect, or read our profiles.
All the best Ulls
To be honest i struggle to believe anything they say , i find that the nurses seem to no what going on better than some off the Doctors .
Take care thank you for reading i think that's the most i have ever written it nice to have someone to talk to it helps .
Thank you Ulls, I have been reading Academic and proper things. Hospitals/ research etc. but I do like it here on this forum as there's comfort in knowing that other people with the same problems are listening. Profiles here are my go-to for things that I can understand and connect to.(especially detailed ones like yours!) Even though we haven't got the full figures yet I need to brace myself for the worse otherwise I'm going to be no help, last thing my partner needs is me falling apart. All the best to you too.
Hi Trevor, thank you for your reply and hope all is ok for you.
mot certainly appears a lot of men are getting missed because of age. We find it just so hard to believe that a cancer affecting 1 in 7 men, a quite common and treatable cancer, is not being picked up, it’s not a rare cancer so they should be picking up these signs and not looking at age and PSA.
We are now at a stage of acceptance but our lives have changed, for now, hopefully we will get back to some form of normality after this treatment.i agree, fresh air and nature helps clear the mind
My hubby did let friends and family know the situation, some of whom he does talk to, he finds it helps.
hope all stays well for you. I will keep updating the profile as treatment goes on
Hi BarryW, thank you for relying
I haven’t long been a member on here but I have found it helpful
my husband had similar pains, legs were really bad as well but felt like he had a rubber tyre inflated around his lower stomach and back as it ached so much. Like your partner they sent him for a colonoscopy for piles, they treated him for polyps but no other follow up to see what was cause all his symptoms, he had been going or speaking with the GPS for nearly 2 years with different problems, all of which we now know where prostate cancer related.
Everything crossed that the scans come back quickly so you both know exactly what you are dealing with. I, like you, did a lot of research and my husband did none, I just think he didn’t think it could be cancer whereas I needed to know everything.
I used to always believe no news good news in terms of investigations but not in terms of this. my husband did eventually get an MRI and when we didn’t hear back with the results assumed all ok but what they did was to send him for other scans before we got any results, by this time we knew it was cancer but thought it would be curable, unfortunately it turned out not to be.
please keep me posted and hopefully you will hear soon and all is ok for you both
x
JNC,
Thank you for your reply, it's all sounding very similar. We are hoping for a phone call on Tuesday with news of either a sit down appointment or a "what's next" from the MRI. Also having a bone scan appointment come through on Friday for next week is quite frankly giving me some serious fear. Processing the enormity of the situation is very hard. I have started a timeline on my profile as that seems to be a place where I can anchor myself. Best wishes for you and your husband and everyone else that reads this x
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