Advanced Prostate Cancer and the Expected Life Expectancy

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Hi all, second post from me but this time my husband is keen to hear from others in a similar situation. 

briefly, he was diagnosed at the end of May with stage 4,  Gleason 9, spread to pelvic wall and multiple lymph nodes.  the oncologist said prognosis 18-24 months but if treatment works then maybe 4 years.  My husband is finding this prognosis so difficult to comes to terms with.  I have tried to reassure him that this may not be the case as I have read on here of lots in a similar situation that have surpassed this time.  
We are still in complete shock and my husband still feels really angry as he had been back and forth to see the GP for a couple of years with, what we know now, many symptoms of prostate cancer and maybe if he hears about guys in a similar situation then it may help.

thank you all x

  • Unfortunately it is true, one of my other group has a rod fitted between their shoulder and elbow because of the bone breaking up.

  • hi 

    I went to the doctors struggling to go to the toilet , had no pains or anything . doctor asked me to do a prostate examination and blood test .then after that all the usual hospital appointment . i was told i had advanced prostate cancer yes i was very upset as i am only 58 years old and thought i have years ahead of me . the first couple of months were hard then i thought to myself well i am still here and while i am still here i will live life to the full . i don't have lots off money to go traveling the world but i have a loving family that our helping by just been normal around me . i try to keep myself happy and act daft to make people smile and it does lift your spirit . yes there are days when i am down but i find going for a walk in nature helps . i am into my second year and still having treatment on a monthly  basis and i do get grumpy but i told people to tell me when i am doing it so that i can stop and think about it and that has helped . i haven't really told people about my cancer because i don't want them to be different around me . people have found out you know how gosip is lol. i hope this help you as long as you have your loved ones around you and keep positive. i know that can be very hard and even i struggle but just this is what helped me . we all have to find are own way of coping . 

    Take care of yourself   

  • Hi Trevor read your post, that's how I found out I had cancer, so very much the same path, I noticed you don't have a profile, it helps new members compaire them selves just a few lines and statistics, not a book like mine. Lol 

  • HI i have only just started going on here  it took me a while to start talking with other people . i will later on do my profile sorry it never crossed my mind i get very forgetful these days 

  • Hi Trevor

    It took me several months to get round to it but the one thing I have done is to tell everyone about my diagnosis. It helps me and helps friends knowing that time might be precious. I've also fund raised for Prostrate Cancer UK. It's worth thinking about as a positive thing to do and a way of coping.    

  • Hi Trevor, I thought you might be new to the group but was unsure, well we are all in the same situation, so feel free to say how you feel we have all been through it, in a way I'm lucky out of the 6 male friends 2 others have prostate cancer, 1 in remission 1 recently had his gland removed, so the 11 of us wives included can talk openly about it, if you haven't viewed my profile, just touch the icon, All the best Ulls 

  • Hi Susex2, I agree with you about talking, if you're open and relaxed about the cancer and side effects it puts others at ease so no embarrassment, works wonders 

  • Hi Ulls 

      i have viewed your profile you been through alot , i have put my profile on now not  as details as yours .

    All the best Ulls 

  • Hi Jnc, Thank you for writing this post as it's been really helpful to me, also being able to read the replies from other members. It's really early days for my partner as he's just over a week in from his blood test and he is now waiting for his results from his MRI. He is in complete denial and hasn't read a single thing whereas I have read everything I can get my hands on. His PSA is 115 and he is 56. like your husband he's had a lot of symptoms of advanced PC that haven't been picked up. Thigh, back and pelvic pain, a feeling that he has pressure down below when he sits and moves and an enlarged prostrate that was suspected piles and only just discovered. Why he was never offered a PSA test before I will never know. Age I guess. I'm sorry I can't offer you any help, apart from saying that you and your husband are not alone and it seems there's a lot of support here to reach out to.

  • I've been writing it for some time now, if it gets much larger, ill self publish on Amazon.