Advanced Prostate Cancer and the Expected Life Expectancy

Hi Paul, thank you for your reply and agree that anger isn’t going to gain anything and I’m sure he will come to terms with it.  he said today that it’s a kind of grief, everything has changed in our life and this is the focus, even when we try for it not to be. 

I’ve just read your profile, 38 years old, so young, my husband was told he was too young at 57.  I’m so glad to read that you seem to be getting back to some kind of normality, that’s what we are hoping for.  Thankfully we both took early retirement 4 years ago and have enjoyed travel etc, we are hoping we can do this again once chemo done, hopefully he will get a break before radiotherapy. 

all the best to you and your family x

The prognosis came from the oncologist who changed the original treatment plan laid out by the urologist  after looking further at my husband’s scans etc. 

I can’t understand why they give these time scales when it seems that people way outlast them or is it that we only hear the positives 

best wishes 

They only guessing, to be quite honest with you I've decided to ignore what the alleged life expectancy is, I'm a millionaire, don't have money, better than that I have a wonderful family and friends, enjoy life, I'll start to worry when I move from incurable incurable to terminal and not before, my toast is " long live all cancer patients", god be with us all.

Hi

I am in a similiar situation as your husband. I was diagnosed with aggressive prostate cancer in Sept 2018. After having radiotherapy, Darolutamide and hormone therapy My cancer has spread to the pelvic wall and lymph nodes. I am also a Gleason 9 I have just started my first chemo session which has been brutal. I have to get this every 3 weeks for 7 months...... I also asked the specialist for my prognosis and was told clearly that no one can predict how long I have to live. My cancer has not metasised to my bones yet so I hope your hubby is the same. The plan is to blast the chemo before it goes into the bones and this should hopefully prolong my life. But no one can give a definitive answer. Hope everything goes ok for him, but tell him NOT to give up.

Cheers Ricky

Hi Ricky, it's excellent that it has not got to you bones, that's a lot of chemo, when it works it will be worth it.

All the best Ulls 

Hi, thank you for your reply. It definitely sounds like you have the same as my husband, has your cancer spread to those areas since you were first diagnosed?  my husband was started on chemo 3 months after starting hormone therapy.  are you having docetaxel?  my husband just had his second round on Wednesday and finds days 3 to 7 really bad, he gets excruciating pain, but found the time after was manageable, he’s hoping for the same this cycle but time will tell. 
i hope things get easier for you with the chemo.  My husband said he will put up with anything if he gets to live longer so he’s trying to remain positive.

best wishes 

I'm on hormones only, the chemo being held in reserve should the hormones stop working, have you read my profile, like you husband I'll take on anything to stay alive.

JNC,

I was diagnosed in November 2021 with advanced Prostate cancer it has spread through my bones, lymph nodes and one lung. I am 57. I had a biopsy of one of my lymph nodes but was never given a Gleason score or anything. Here they call it stage 4b, terminal. I have never asked the doctors for my life expectancy, I’m not sure why. I have googled the crap out of it though. When diagnosed I was put on Lupron, Zometa and had 6 cycles of Docetaxel. The chemo had its tough times and found using a fentanyl patch during days 2-7 or so and found it helped immensely. The treatment I had was based off the Sweeney trial and here is a link to the results of the trail. https://pubmed.ncbi.nlm.nih.gov/26244877/

I’m not sure if this will be any help or not and wish you and your Husband the best.

Scott

Hi Ulls, I have read your profile and it’s really informative.  I do wonder why they started my husband on chemo 3 months after starting hormones, his symptoms ate pretty much the same.

I will do a profile in the next few days as they are helpful to others

Hi Scott, thank you for your reply. you are the same age as my husband but his is extensive in  lymph nodes and pelvic wall.   Why no Gleason score etc, do you live outside of the UK 

my husband finds those days on chemo the worst but hasn’t been offered any pain relief apart from codiene, his go did give him liquid morphine which helped on day 6 as pain so bad.  He also gets really bad rashes, this round on the groin but last time gave. 

did they re scan you after your treatments to see what impact it had?  my husband’s PC doesn’t show through PSA so they can’t monitor that way.

thank you for the link, we’ll take a look at it. 

wishing you all the best