Hello all. First I want to thank any of the people who've taken time to respond to my posts. I'm very grateful.
My quick intro: 68 year old male, Caucasian, American living in Tokyo, Japan. Diagnosed with Stage 1, localized in the prostrate (after an extremely unpleasant biopsy which you can read about in another post).
I was essentially only offered brachytherapy and surgery, not EBRT. I have done my best to research all. I met again with my doctors. The more experienced of the two said that either brachy or surgery (prostatectomy) would do the trick. And I thought if I have a CHOICE, I'm not going to do the surgery and stay in hospital for 10 days and have a long list of possible risks, longer, I think than brachy. He didn't have a strong feeling one way or the other, which I found odd. He said if you'd rather avoid being cut, then go with brachy. I asked about EBRT. He said there was the risk of the bladder and the rectum being hit with radiation. I couldn't gather my thoughts fast enough to ask him "If that's the case, then why is it even offered?" I will ask that at my next session, next week, where I'm expected to decide what to do.
It SEEMS that EBRT is the LEAST invasive. The hormone therapy sounds troubling, but if the combo of EBRT and hormone therapy "does the trick" then, assuming the radiation doesn't hit my bladder or rectum, it seems the best choice. What has your experience been, for those who have gone through it?
With brachy, as I now understand, because I certainly didn't before, the radiation seeds are planted in the prostate and are active up to six months. But, the doctor felt that this was an effective way to kill the cancer in the prostate. But, as I researched, those seeds stay in the prostate until you die and they can accidentally end up in different parts of the body, although, apparently they are harmless at that point. (But if I had to urinate one out, I don't think it would be "harmless.")
Gents, please, any words of wisdom would be greatly, greatly appreciated. I notice that many men here seem to have gotten the EBRT/Hormone treatment. If you've gone through that completely... does your body return to normal? Do your "breasts" go away? Do your testicles descend again? Do you lose your extra layer of tummy fat? Or am I completely bonkers and not understanding any of this?
My main concern, assuming I survive one of these procedures (and as for brachy, my doctor seemed to feel I'd be fine and survive quite nicely) is urinating without pain. Also, the doctor said I'd have to wear padding for about three months because of leakage. I can handle that I think, but to wear it for the rest of my life would be disheartening.
He also said that, as opposed to surgery, brachy would not harm the nerve that would allow me to have an erection. But he added that I'd most likely be impotent for 3-5 years after the procedure. That was a new piece of information.
I don't know how or why it would take 3-5 years, so that is another thing that goes onto the research list.
Meanwhile, any thoughts/advice/bits of wisdom/and straight on jokes and humor are all greatly appreciated. Thank you kindly!
Sorry to take so long to reply but when I first got this in my inbox I couldn't log in to reply. I think the unusual heat must have been having an effect on something here.
I have to tell you that my brother had brachytherapy only about 4 years ago and within weeks about 3 he was back to normal with no problems - he had a few urinary problems right at the beginning but short term medication sorted those and he is now fine. He also has not been impotent for the last 3 - 5 years and neither have I. The seeds have thus far not caused him any problems either. I had Hormone Treatment for 9 months and at 6 months started a month of EBRT with the help of fiducial markers - 3 gold markers, about the size of a grain of rice inserted into the prostate to help with the targetting of the radiotherapy as the tumour was pushing into my rectum and I wanted to avoid any problems after the radiotherapy. Thankfully this worked as it should and I didn't have any bowel problems or urinary problems during or after radiotherapy apart from one night about half way through the radiotherapy when I was up most of the night urinating. The fiducial markers are still there and at a scan about 3 years ago hadn't moved. My wife would love to have them! Its the most i have ever been worth moneywise she jokes.
The effects of the HT were minimal for me as I continued to exercise 3 to 4 times a week in the gym all the way through treatment and really didn't notice the side effects at all. Carrying on as normal I feel is important. Don't forget not everyone gets the side effects, some get a few and just light side effects where some get one or two really badly. There must be some of us who get the whole cartload badly too as well as some who get them all but lightly. If you are going to be kept on HT for up to 3 years then while on HT you will be impotent but once off the HT all the symptoms slowly fade away. I was on HT for 9 months and within 6 months my small extra belly, moobs. and the few lbs I had gained etc. disappeared. within 2 months I was doing a charity bicycle ride. Within the first year - infact a few months before the time of my first annual check after completing RT - so may be nine or ten months after the end of radiotherapy I was able to enjoy full intercourse with my wife - which concerned me as I worried that the return of the testosterone would mean the cancer may progress (it doesn't and it didn't). I even had to ask the consultant about that at my first annual check. For the last 6 years my PSA has been undetectable and life is boringly normal for me but unfortunately I have got older. Having said that I am lucky to now be still alive at my age when a friend of mine died at 58 from prostate cancer (he was embarassed to go to his GP with his symptoms) and my brother-in-law diagnosed with advanced prostate cancer at 54 died at 68 that's over 7 years ago. All side effects are worth the life I have had and I have many old friends and colleagues who died young in accidents or of other cancers who would love to be still alive and grumbling about side effects.
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