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PR1950 over 2 years ago

3 replies
165 subscribers
582 views

Hello.
I'm new to this. I'm 71 and was diagnosed in February 2021. Gleeson 9, PSA 729, now 0.04 thanks to Prostep, Enzalutimide and radio therapy. I feel very lucky.
I've joined a local Prostrate Cancer support group but all of the members are at stage 2 or 3, have had operations and are now struggling with catheters and ED (that ship sailed long ago for me due to the treatment). I'd appreciate sharing experiences with people on the same course of treatment as myself.

Thanks.

Stevecam over 2 years ago

The more people you can talk about it to the better. This forum is great getting answers and good information from people who have been through it and all it's side effects.

Steve (SteveCam)

PR1950 over 2 years ago in reply to Stevecam

Thanks Steve.
Would be really good to talk with someone who’s on enzalutimide . It’s working for me but there are a few side effects and sharing coping with them would be useful.
Peter

Paul82 over 2 years ago in reply to PR1950

Hello, sorry to hear of your diagnosis PR, I have been on enzalutimide for around 12 months now and some people on here much longer. It's not without its side effects as is HT but if you respond to the treatments they really are fantastic. Have a read of people's profiles for their journeys so far, click on the members name. From there you can private message people, I'm always free for a chat. Also there is a thread titled enzalutimide on here which has lots of users opinions and advice. Take care

Regards

Paul

"Diagnosed March 2021 at 38 years old with stage 4 metastatic prostate cancer, my journey so far is on my profile"

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