Greetings all here.
I was diagnosed last September: Gleason 7 (3+4), T2, NX MX, PSA 12.6. After CT and bone scans - both clear: N0 M0 - I was offered “Watchful Waiting” or hormones and then radiotherapy; surgery was not on the menu. At 80 (now 81) and in otherwise good health, I felt that, after 5 or so years of waiting watchfully, I might not be in shape to undergo radiotherapy so I opted for the other available.
Hormone therapy began in early February with tablets to counteract the initial reaction to the injections, with the first shot of the dreaded hormone. Dreaded because of warnings of the possibility of hot flushes, night sweats and raging PMT-style fury. I toyed with the idea of buying a tee shirt printed with “Warning: Zero to Homicidal in 6 Seconds”. My PSA was recorded at 14.7.
The first 3 month, long-term hormone injection in mid March and a PSA test before an oncology consultation last week. So far no sweats or swearing at my wife, well no more than usual, and I may not need the personal fan after all. The oncologist tells me my PSA 1.0! I am truly delighted!
I’m posting this for the benefit of those recently-joined members of this exclusive club who may be planning the purchase of personal fans and similar tee shirts. Everyone reacts differently to the treatment and, to be honest, PC treatment can be not much more than a somewhat undignified inconvenience. At my age other factors are queuing up to try and do me in and I might die with, rather than from, prostate cancer. I know that this journey can be a much more difficult one for others but don’t rush your fences; don’t discount the tales of sweat and swearing but don’t worry unnecessarily. Hope for the best and buy a battery fan…
The Shellback
Hi Shellback
Thanks very much for taking the time to write about your experience with prostate cancer. I'm sure both existing and new members will find it very useful.
When you have a minute it would be great if you could add this to your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself.
Take care
x
Richard,
Love the T-shirt idea. Had my last Decapeptyl injection on Christmas Eve. Oncologist told me in February that I won't require any further injections (touch-wood) as long as my PSA levels can stay between 0 and 2 (0.09 in February).
Probably going to be in the autumn before I am rid of the dreaded Hormones. I don't regret it though.
Sex life, what sex life! I have never even thought about it. I was warned that my libido may suffer... suffer!!!
I remember at the start wondering what a hot flush would be like. Now!!! I wonder what life will be like without them.
Steve (SteveCam)
Hello Steve,
Good to hear that your maintaining the progress. I wonder if the cost of energy will have the same effect on those of us with the Glushes, it’s an ill wind… In the meantime, I still have the hard yards to do, probably in the autumn. Next oncologist review at the end of July.
Best,
Richard the Shellback
The situation is desperate - but not serious.
Richard, this will make you laugh.
You know on TV when you see addicts at AA meetings get their 100 day chips.
I was at a 'Prostate Cancer Support Group' last week and guess what I was presented with???
Not only the'Key to the Door', but a 'Radar' key to the toilet.
I never knew that we could have access to them. All this time...
Steve (SteveCam)
Not laughing Steve - that’s REALLY useful info. Any port in a storm. I drive the 80 or so miles from our home to the west highlands where the grandchildren are. Isolated lay-bys are fine - have you noticed the lush, vegetative growth in them that an excess of nitrogen can produce? - but rural toilets, when they exist, are often closed out of season or in the evenings. Scotland is the country where councils locked up the children’s swings on the Sabbath, after all…
Richard the Shellback
The situation is desperate - but not serious.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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