When does treatment end?

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I have just had my last Prostap 3 injection of a 3 year course so, in my opinion I have now finished treatment. However the Urology department at my local hospital seem to differ. I received a letter from them about a year ago saying that my PSA would be monitored every three months for two years after the end of treatment followed by every six months up to five years and then annually up to ten years.

I had one test in early October 2020 and nothing since until yesterday when they sent me an appointment for December 2021! In the meantime I have been getting tested at the GP practice when having my Prostap injections. The Urology department seems to have interpreted the end of my 20 sessions of RT as the finish of treatment (now well over two years ago) and not the end of HT.

I would like to hear from anyone how their consultant or GP arranged their "follow-up" PSA Tests after treatment ended as it seems a bit chaotic to me.

  • Hi Seamus and welcome

    Only joking,.  My RT finished March 2017, after 1st year PSA test went to annually via the GP and the hospital would phone for the result. So 2022 will be the last time for this procedure.

    Then PSA will be at the GP and only contact the hospital if the result starts going in the wrong direction.

    I didn't ask how long for in that routine but I kind of assume indefinitely. 

    All the best

    Steve

  • I've always arranged things through my GP.

    Do you think maybe  they are arranging a follow-up appointment clinic with you, and want to ensure you have a 'fresh' PSA prior to that?

    Different consultants 'discharge' you at different stages. I was discharged from the 'clinic list' at the end of my radiotherapy, and saw a different consultant the one time  my GP queried something, as if I was a new patient.

    My 'three year sentence' of Zoladex (similar to Prostap) started with my RT, as I was on tablets for a few weeks before that, and didn't count them, so there was no confusion about when it would finish.

    If in doubt, best to contact the specialist nurse or the radiotherapy department: worth doing if you think there may be some misunderstanding about HT end date.

    The PSA monitoring regime - yours sounds very sensible - is a quite separate matter. Although RT is often given as a 'curative' treatment (depending on the extent of the PCa at the time), it does not cure in 100% of cases, and if it does recur, it could be soon or many years later: monitoring is a wise precaution.

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.