I was diagnosed with Primary Peritoneal Cancer in May 24, I had 12 rounds of chemotherapy and eventually the surgeon agreed to do surgery which I had in December 24, I was told that they had managed to clear all visible signs of cancer and even saved me from having a stoma .
i recovered well and because of the vast amount of chemo I had had they didn’t want me to have the mop up chemo . I was started on Niraparib and have completed 2 months, on the whole I haven’t had too many symptoms, I have neuropathy of my feet and trying to learn to live with it, but the fatigue and shortness of breath is awful, just wondering if this will be a permanent thing, I just want to wake up and feel refreshed instead of no energy, it’s been a long road so far and the mental health side of it is very hard.
if anyone is on this path it would be good to share your experience.
Hi Love Hols
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could update your profile with your treatment to date as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
