Hello I’ve just been diagnosed with Primary Peritoneal Cancer and as I have a very high tumour marker (CEA blood test =199) I have been told by Basingstoke Peritoneal Malignancy Institute that I will be in the 40% of people where it will come back after 1-2 years. I’ve been told that they can remove everything except the small bowel because you can’t live without this - so some of the disease will be left behind and then grow again - so my prognosis is not good at all unfortunately. Has anyone else been through similar circumstances to me? Thank you for reading this…
Hi Puntoelx and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
