PPC

Hi Zebaish and a very warm welcome to the online community

If you type 'HIPEC' into the search bar at the top of the page there are quite a few posts which mention having this treatment in the UK. You could have a look through some of them and respond to any of the more recent posts if you wanted to ask the poster any questions about it.

It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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1. Hi Zebaish, I've got PPC and I'm very interested in HIPEC too. There are 2 hospitals in the UK that perform this surgery which is Christie in Manchester and Basingstoke and North Hampshire hospital. HIPEC is at the trial stages and there are strict criteria to qualify but it's something that is available in the UK. I'm planning co contact Christie once I've got my CT scan result if they'll accept me for surgery with HIPEC. Wishing you all the best 

Hi Julie. 

How are you?. Did you get a consultation for HIPEC at Christis?  And how did it go? Have you been selected? 

Hi Zebaish,  I've had initial consultation over the phone yesterday. Dr needed my permission to discuss my case at MDT next Friday. I'm expecting more news next Friday. Very likely surgery will be available for me though private sector only. I'm waiting for them to let me know how much it might be if I'm a good candidate for it. 

My Dr in Derby wants to give me 2 more chemo ( which will be 6 in total) to extend my time for surgery due to lack of ICU beds. My response to chemo was good, cancer shrank a lot after 3 cycles. 

How are you doing? 

Sending best wishes 

Hi Julie 

Hope you have the news your hoping for. 

Its my  4th week post surgery and I'm  recovering well. Dr was hoping to start my  4th cycle of chemo today but due to a small surgical wound which is not properly healed will wait.

Good luck with your treatment. 

Hi Zebaish,  

I'm still waiting for Christie to contact me How are you? How did the surgery go? Did they manage to remove all cancer? How long did you stay at the hospital for?

My 5th chemo was due last Wednesday but never got it as my blood results were too low. 

Take care, all the best xx 

Hi Julie 

Hope your bloods have risen now. What was low your white/ red or both? And have they given you anything fot it?   

My surgery went really well but I was told a tiny amount was left as it was glitter like and too small to remove so chemo is needed for that.

Take care xx

Hi Zebaish,  

My neutrophils result was too low, min is 1.5 mine was around 0.9. Next blood test on Monday but they told me even if it's still low I'll get chemo on Wed. I asked if there's anything I can take/ eat/ drink to make it better but was told no. I've been told it's normal,  happens to many people and nothing to worry about. 

How many more chemo they want to give you?

Take care xx 

Hi Julie, 

On diagnosis I was told 3 chemos before and 3 after surgery.

My wbc dropped during my 3rd chemo and I was so out of breath, I  could not even stand up to brush my teeth. My pulse and blood pressure were high too. (which is normally never high)  I spent 8 hours in a very crowded A&E to be told this. I normally isolate as aware I'm vulnerable.

A week before my surgery I was told my red blood cell had dropped to 96 (normal I believe is 120 / 150 ) so was given blood transfusion a day before surgery. After surgery it was 106 and although I was told I will get another transfusion after surgery they decided not to.

My wound is looking slightly better so might have 4th chemo on Thursday.

Good luck with your chemo on Wednesday xx

Hi.  I  was diagnosed with Stage 3C PPC last March and have had six rounds of chemo.  Going in next week for the 8 hour Ultra-Radical cyto-reduction surgery if they can hold a critical care bed for me.  I thought I would just mention my experience with the Christie (to which I was referred for a second opinion) and HIPEC. I thought the staff at the Christie were wonderful and really helpful, but they cannot offer HIPEC for this type of cancer as it is not approved other than for certain specific trials which do not apply in this case.  They suggested the surgery (at a more local hospital, one of eight which offer it in the UK) as the best option and I am expecting to have further chemotherapy afterwards.  The chemo has been effective despite the unpleasant side effects and I am feeling pretty well at the moment, so hope that I do not take too long to recover from the surgery...they are saying it will be about 6 months before I get anything like back to normal.  Hope your treatment is going well now. Best wishes.