Peripheral neuropathy

Divingisfun

Hi Wendy

Having peripheral neuropathy sounds very unpleasant and it's no wonder you want to find something to treat it with. I don't have the experience you're looking for but noticed that your post hasn't had any replies yet.

I had a search in the group for any previous posts on this topic but only found this one I'm afraid. You could reply to the post but it is a couple of years old now so the posters might no longer be members of this community.

I'm assuming that you've spoken to your CNS and she hasn't been able to help. You could also post this question in the ask a nurse section of the online community and one of the specialist nurses will respond within 3 working days. If this is something that you'd like to do then clicking on the link I've created will take you straight there.

You might also like to take a look at this information from Macmillan on peripheral neuropathy as it has a section on managing it.

I hope you're able to find something that works soon

x

Your symptoms sound very similar to mine. I have that feeling of 'bunched up' under my toes; worse on the right foot than left. I had 4 rounds of chemo, with the last a reduced dose of Oxilaplatin as I was concerned about side effects (they wanted to give me 8 but I refused more treatement after 4, and they agreed). I had no neuropathy for six weeks after chemo and then it appeared; it it pretty mild. Fuzzy feet (and tingly fingertips) describes it. The oncologist said it is not uncommon and should resolve in 3-6 months. It waxes and wanes a bit, but mostly mild discomfort, more just an awareness of it feeling 'fuzzy' as you say. It did also have it in the shin bone on my left leg, but that disappeared after 4 weeks or so. I am confident it will resolve as I am assured by the chief oncologist that it is rarely permanent after three months (ie 4 rounds) of chemo and from my own research the experience of others confirms that.

hi Wendy, 

I had 6 cycles that included paclitaxel. This was blamed for the peripheral neuropathy I first noticed in my fingers (mostly thumbs and index fingers) during the chemo (which finished in March 21) so my dose of that drug was reduced.  I never complained about my feet....tbh wearing sandals and/or slippers as I did through most of shielding/lockdown, I didn't really notice it   it was most apparent in the shower in the morning and whist in my walking boots....  and yes it felt just as you describe.  Whilst that in my hands got better almost immediately after the drug adjustment, that in my feet remains still (now writing this in July, so 4 months later).  I can't suggest any remedy I'm afraid, it probably depends on how quickly those nerve endings repair?    So like many things, maybe trying to distract yourself with something more exciting is a plan

Hello , one of the oncologists at my center is doing a trial using Cream with 2% menthol , you can buy it off Amazon , it won't make it go away but gives you relief. I was told to keep on using it as a prophylactic .... Let's see how it goes .