Advice on coping with Primary Peritoneal Cancer

FormerMember
FormerMember
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Good morning

My Mother in Law has just been diagnosed with PPC after several tests and scans. She started going downhill a few months ago and has gone from a sociable 80 year old who liked to go out a few times a week to play bingo and take holidays with the local community club to someone who refuses to eat or only eat tiny morsels and complains of pain in her abdomen and back.

She was diagnosed yesterday and is due to see the Oncologist tomorrow to discuss Chemotherapy.

At about the same time as the PPC symptoms started she is also presenting with Dementia symptoms: not washing, forgetting how to do simple tasks like turning the TV on, memory loss etc. We are not sure if this is anything to do with the Cancer or purely age related but it has appeared very quickly and also makes her a little aggressive if we are trying to get her to eat or take a shower. She is going for a brain scan imminently to check that out.

This is all new to us so if anyone on the forum has any experiences that they are willing to share or suggestions it would be most appreciated. For instance, she cannot tell us why she won't eat - so any experience of this would help us to understand. She doesn't have any problem eating chocolate mousse by the way. 

My best wishes to you all

  • Hi and welcome to the online community

    I'm very sorry to hear that your mother-in-law has been diagnosed with PCC and that she is struggling to do things now. It must be very distressing for you all.

    I don't have any experiences with this type of cancer to share with you but I noticed that your post hadn't had any replies. This group looks like it's very quiet so there might not be anyone currently here who can share experiences with you.

    Could I suggest that you post your question in ask a nurse and one of the specialist nurses will respond within 2 working days.

    When you have a minute it would be really useful if could pop something about your mother-in-law's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • I am younger than your mum but from my experience ....

    2 years ago I more or less stopped eating. I felt very full very quickly and actually food bored me. At the same time I stopped drinking for about 8 months. I lost weight but developed a huge stomach and lost lots of weight. I then had my stomach drained 3 times and started on chemo which worked but obviously had side effects. Your brain does go a bit mushy. Perhaps probably part of her problem?

    i am still here 2 years on so very lucky.

    hope you get her treatment resolved.

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