So, I find myself about to enter my 13th week without a definitive diagnosis or any sort of treatment plan.
My consultant was supposed to ring me when Basingstoke consultants have decided to take me on. Seems not decided yet.
I seems pretty likely that I have Primary Peritoneal Mucinous Adenocarcinoma. PPMA
Does anyone else have this cancer?
A rare cancer and this is perhaps why it's taking so long.
Apparently my PET SCAN has been reported but not yet available.
In the meantime, I feel unwell and anxious.
Has anyone else with this or similar cancer type ( ovarian, tubal or perhaps other gastro - intestimal origin ) received treatment at Basingstoke or maybe The Christie in Manchester, and if so did you receive HIPEC , and what was the outcome?
Hello Chhekkat. I'm from California. I was also diagnosed with Primary perotineal cancer. Stage 3c. I was lucky enough to be a good candidate for HIPEC. Along with the 8 rounds of chemotherapy, Hipec and Lynparza I'm happy to say my cancer is still sleeping. For me it was a life saver. I hope this helped in some kind of way. Take care
Yes there is an entire “rubber ring” of ascites around my middle and my back and I also have a massive fibroid which measures 13 x10x11cms ♀️So I’m pretty knackered. My operation in Basingstoke isn’t until 2nd October so I’ve asked to be drained in Swindon hospital but nothing has happened yet doh … it’s all really slow moving and frusating I’m now staying in hospital until I go to Basingstoke hopefully as I don’t feel well enough living alone anymore…
How come the wait is so long?
It's the fibroid cancer?
My mass is 18x 15 x 12 cm and I'm told it has to be removed as it's cancer.
I see in your profile that you state that you are terminal and your consultant says you may not be worth operating on?
Surely if it's that large it needs to come out as it must be impacting on your other organs and bowels.
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