Reaction to chemo drugs …. What’s next ?

Hi, so sorry your Mum has to go through this at her stage in life. I started my chemo at the beginning of June which was Paclitaxel. After 4 mins I had a bad reaction and the treatment was stopped. I got a phone call to attend an appointment with my Oncologist 2 days later. My Oncologist changed my drug to Docetaxel. Again I had an allergic reaction to this treatment too and was again sent home without any treatment. I got another ph call to meet with my Oncologist 2 days later and he has now put me onto Carboplatin only. I start this tomorrow 26/6 and am a bit apprehensive about another reaction. When I spoke to my Oncologist about my reactions and my worries that I wouldn't get treatment, he said dont worry about it, its his job to sort out the drug and to make sure one of them works for me. So I am sure you will be getting a call in a day or so with another appointment for your Mum to meet her Oncologist and to try her on another drug. Good Luck with her treatment, sending hugs. x

Edgecumbe Girl , Thank you so much for your reply . It was a huge help ! 

Our oncologist made contact today and they are also going to try the next treatment with just Carboplatin .  for both of us no reactions . 
Hope yours goes well . Keep me updated ? X

Hi, had my Carboplatin this morning. My appointment was 10am and I left the chemo room at 12 noon. The infusion went well with no allergic reaction. I am home resting now. So far I have a bad headache, ringing in my ears, tummy cramps, a bit of blurred vision (on and off)  and tingling in my toes and fingers. Im sure this will change once the steroids and anti sickness drugs have worn off. I have been sent home with steroids for 3 days and anti sickness tablets as and when I need them. Its early days so things may change. Good Luck and let me know how she gets on x

That’s great news ! Let’s hope the side effect are minimal for you . 

I will do x 

Hi, just a quick update.... day after chemo, I was fine, like nothing had happened. Day 2 and 3 not so good, tired, headache, ringing in ears, lethargic, unsteady on my feet and light headed,  and very thirsty.  day 3 was last day of steroids so hoping day 4 will improve. Managed a few short walks and felt better for the bit of exercise. Hope your Mum is doing ok x

Hey, how are you getting on ? I hope your side effects improved over the days . 

My mum had her treatment yesterday ( Carboplatin only ) and thankfully all went smoothly. 

She’s had some  similar side effects as you so far with headache and dizziness . We plan for her to get some exercise tomorrow as this helps her both physically and mentally x

Glad the carboplatin went in ok. I have discovered that the day after was ok, just a bit dizzy then for a week after infusion I have been having bad days, mainly sickness, dizzy and feeling unsteady on my feet. Extremely hungry and very thirsty. When I took the anti sickness tablets they gave me bad indigestion. I took the put up and shut kind of route but next time I have my infusion I will ask if there is an alternative to the ones I was prescribed. From now on I will expect to be off colour for a week after infusion. From Wednesday this week (exactly a week after infusion) I have managed a few days on the East Coast for some much needed sunshine, warmth and sea air, it's lovely. Not looking forward to 17th July (next infusion) but it has to be done. I hope your Mum is doing ok and that she is managing her side effects without too much trouble x  Keep going 

Hi ,

How are you getting on ? 

Mum doing ok . Mainly a headache and feeling dizzy.  She’s had a little sickness but once she takes a tablet again it disappears for a day or 2 so a bit inconsistent. It will be one week on from the infusion tomorrow so we’re hoping she will start to improve over the weekend

All the best for the 17th . Hope it’s a smoother one again x

Not sure if it’s possible on here but more than happy for you to message me directly if you wish so it’s not always on thread ? Not a prob if not x