Hello! I am writing for any perspective on what my mom is currently going through. In mid-August I took her to ER with a distended belly, after a CT, was told she had metatstatic cancer but as they were not sure of the primary source, ordered a bunch of diagnostic tests. Everything came back fine, aside from a comment indicating that the right ovary could not be seen. After a month of frustration, told that the cancer is either ovarian that has metastasized to the peritoneal or the primary is peritoneal. Given her very frail and weakened state, she had one round of chemo using only one drug instead of the standard two, within 48 hours the fluid returned and the oncologist indicated that quality of life is the best option at this point. The ascites returns within 2-3 days and she is living with us receiving palliative nursing visits. Thank you so much for reading my post and providing any thoughts or comments. Much appreciated.
Hi willie49
Just wanted to pop on and welcome you to the forum ! My own mum had post op ascites and it can be so uncomfortable for them ! It is wonderful of you to look after your mum !
Some patients on the bowel cancer forum have experienced similar in that they have had a spread but an unknown primary with only a biopsy on the spread indicating bowel cancer !
There are two groups you might find helpful in terms of caring for you mum .
https://community.macmillan.org.uk/cancer_experiences/carers-only-forum
And
https://community.macmillan.org.uk/cancer_experiences/supporting-someone-with-incurable-cancer-forum
Some good advice on there !
We also have a helpline 0808 808 0000 who would be happy to chat through any aspect !
Thinking of you and your family at this difficult time !
Court
Helpline Number 0808 808 0000
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