Aged 73 and diagnosed and operated for Bowel Cancer April 2018. In February 2020 following CT Scan diagnosed with peritoneal mets, and in the opinion of the surgeon incureable, although in response to my query about CRS and HIPEC did offer to refer me to Basingstoke.
4 sessions of chemo followed, Irinotecan and Capecitabine tablets followed. I was assessed for the addition of Cetuximab, but ruled out as RAS mutation (KRAS Codon 13). The post chemo scan showed stable, and I had a 2 month chemo break.
Having heard nothing about CRS/HIPEC followed up and was told that Basingstoke replied in August to sat that it would not be of benefit to me.
Have just had a telephone consultation with my Oncologist following my most recent scan. After a chemo break, this not surprisingly showed progression, although still confined to omentum, with no involving with liver or bones. The measurement of nodule showing an increase from 41 to 47 mm.
I asked for prognosis without/with treatment and he opined Under 6 months/Under 12. Outwardly feeling quite well and walking st least 5 k without problem, difficult to reconcile this diagnosis.
I asked him about PIPAC, and he has agreed to refer me to Jamie Murphy at Imperial College, who is undertaking a PIPAC Trial, which represents my best hope. I am outside the catchment area and hope that would not exclude me as I am sure that I could manage the logistics of making regular appointments.
Hi
I'm sorry to read that you were diagnosed with bowel cancer which has spread to your peritoneum.
I haven't had the same type of cancer as you but I noticed that your post hadn't had any replies yet. If I've understood your post correctly, I think the cancer in your peritoneum is a secondary. If so, it might be an idea to also join the Bowel (colon and rectal) cancer forum group as in the peritoneal cancer group you'll mainly find people who have primary peritoneal cancer and their treatment is likely to be different to yours.
If you'd like to join the bowel cancer group just click on the link I've created and then choose 'click to join' on the page that opens. You can then copy and paste your post from here to save you typing it out again after selecting '+New' or '+' (depending on the device you're using).
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You could copy and paste most of what you've said here into your profile or take a look at mine by clicking on my username to see the sort of thing you could add.
I hope your referral for the PIPAC trial is a success.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
That's great . I'm hopeful that you'll get replies in that group.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
