Hi all,
just feeling the need to re-post. When I started this thread I couldn’t find anyone with PPC, now there’s a few of us not sure if that’s a good thing or bad
. When I was diagnosed exactly a year ago, I was so ill, that the oncologists was extremely worried, but after 8 very trying months, of chemo,surgery,transfusions, reactions, infections, and 3 and a half stone weight loss, and 6 months in a wheelchair not to mention the hair loss. I now go back to work on Tuesday.
And I feel great. Going through it, I was so ill, I didn’t think about it, and I do think that googling everything has a negative impact on how you feel. Everything on google is almost 5 years out of date, and there’s a lot of horror stories out there. If I have any words of advice it is this.
Take each day one at a time, don’t google ( as we are all very different and there’s a lot of different cancers, grades etc) and do exactly as your oncologist tells you. They do know best. Don’t be worried about ringing the number they give you if you are worried about anything. Get as much rest as possible. You will get very tired, but that does get better, even though it’s very slow to return. If you feel like eating, eat the best quality that you can afford. You will come out the other end.
Best of luck. xxx
Hi photohappy, thank you for posting this lovely and positive news. I work in the oncology field and had never come across PPC until they thought that was my diagnosis in May last year. I have now come through chemotherapy and surgery but still having Avastin maintenance therapy. I am still off work and trying not to worry about going back. I’m getting some good support now through the oncology unit to help with fatigue, relaxation, coping etc.
I would be interested to know how you are feeling if you are also still on Avastin.
I joined the forum to try to find some positive news, so thankyou again for posting your update. 
hugest THANK YOU for what sounds to be very sensible advice (is that just because it agrees with what I think anyway 
?) Recently diagnosed, I feel like I'm about to get on a roller coaster that goes into a dark deep tunnel Possibly with dragons lurking. It's definitely good to hear some positivity about lies ahead
